The Amyloidosis Foundation is a non-profit organization that is the result of the merge in 2007 of the Amyloidosis Research Foundation and the Amyloidosis Support Network.
The Amyloidosis Research Foundation was founded by Don Brockman and Mary O’Donnell in 2003 with the purpose of supporting medical and scientific research for amyloidosis.
The Amyloidosis Support Network has roots back to 1999 when Terry O’Malley believed that patients and caregivers could be reached, and help could be provided through the internet. This was the genesis of the website which was dedicated to patient support and awareness. Unfortunately Terry passed away in May 2000 due to complications from Amyloidosis. Dennis Krysmalski supported the website since 1999 and in 2004 officially established the ASN as a non-profit organization. The commitment was to make a difference in the lives of patients and families, and to increase the awareness of the disease among the medical community.
With the merge of these two organizations, the missions of both are brought together. We continue to support research through our grant program, work towards raising awareness of the disease and helping patients and their families.
Isabelle Lousada - Board Chairman
Mary O'Donnell - President
Richard Cwiek - Treasurer
Uria Espinoza - Secretary
Raymond Comenzo, MD
Robert A. Kyle, MD
Stephen P. Miller
Martha Skinner, MD
Giampaolo Merlini, MD
Our medical advisory board consists of some of the most eminent physicians in the amyloidosis community. The purpose of this board is to advise us on medical issues & policies as it relates to research, our website and publications.
We are very proud to list the following members:
Raymond Comenzo, M.D.
Tufts Medical Center
Rodney H. Falk, M.D.
Brigham and Women's Hospital
Morie Gertz, M.D.
Mayo Clinic - Rochester
David Seldin, M.D.
Boston Medical University - Amyloid Treatment Center
Alan Solomon, M.D.
University of Tennessee Graduate School of Medicine