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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 29 Total Results |
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| Name: |
Shaun B |
| Home: |
San Diego |
| Amyloidosis Type: |
Localized |
| Affected Areas: |
Eyes |
| Treatment Date: |
None Yet |
| Create Date: |
6/6/2005 1:26:40 AM |
| Updated: |
6/6/2005 |
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| Name: |
Cathy Baker |
| Home: |
St. Cloud, Minnesota USA |
| Amyloidosis Type: |
Localized |
| Affected Areas: |
Bladder |
| Hospital: |
The Mayo Clinic in Rochester MN |
| Treatment Date: |
6/14/2007 |
| Primary Treatment Received to Date: |
Laser surgery for 6/14/07 |
| Create Date: |
6/1/2007 9:52:58 AM |
| Updated: |
7/2/2007 |
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| Name: |
Patricia Baker |
| Home: |
Auckland, New Zealand |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Gastrointestinal, Heart |
| Hospital: |
North Shore Hospital in Auckland, New Zealand |
| Treatment Date: |
11/2001 |
| Primary Treatment Received to Date: |
Oral Melphalan and Dex, Thalidomide, Renitec (for congestive heart failure) |
| Updated: |
3/16/2002 |
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| Name: |
Jenny Barsby |
| Home: |
CHESTER |
| Amyloidosis Type: |
Cerebral Amyloid Angiopathy |
| Affected Areas: |
Blood vessels, Brain |
| Treatment Date: |
N/A |
| Primary Treatment Received to Date: |
N/A |
| Create Date: |
5/29/2004 2:52:56 PM |
| Updated: |
6/9/2004 |
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| Name: |
Tim Bass |
| Home: |
Prattville, AL USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys, Heart, Liver |
| Hospital: |
Boston University Medical Center |
| Treatment Date: |
2003 |
| Primary Treatment Received to Date: |
SCT with High-Dose Chemotherapy |
| Create Date: |
11/30/2002 9:30:40 AM |
| Updated: |
4/2/2007 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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