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9/9/2010


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Amyloidosis
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Our Own Experience With This Rare Disease

Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.

To read any individual's detailed story, click on the names listed below.

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  Displaying 1 - 5 of 28 Total Results Next >  

Name: Tensie Cahill
Home: Strafford New Hampshire USA
Amyloidosis Type: AL Amyloidosis
Affected Areas: Kidneys, Nervous System
Hospital: Dartmouth
Treatment Date: 08/2003
Primary Treatment Received to Date: Dex
Create Date: 9/19/2003 6:22:36 PM
Updated: 10/1/2003
   
Name: Gisela Caldwell
Home: San Diego, CA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Heart
Hospital: Boston Univ. Medical Center, USA
Treatment Date: 03/1997
Primary Treatment Received to Date: AuSCT with High Dose Chemotherapy
Create Date: 7/11/2002 1:53:25 PM
Updated: 7/13/2002
   
Name: Renate Calligaris
Home: New Hudson, Michigan, USA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Heart
Hospital: Mayo Clinic, Rochester MN, USA
Treatment Date: 11/01
Primary Treatment Received to Date: AuSCT with High Dose Chemotherapy
Create Date: 7/19/2002 7:42:02 AM
Updated: 7/19/2002
   
Name: Kenny Camp
Home: Stephenville, Texas USA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Heart, Nervous System, Gastrointestinal
Hospital: The Mayo Clinic, Rochester MN USA
Treatment Date: 4/2004
Primary Treatment Received to Date: Dex, Prednisone
Create Date: 3/7/2007 6:30:59 AM
Updated: 3/7/2007
   
Name: Patricia Campbell
Home: Longview, TX
Amyloidosis Type: Primary AL Amyloidosis
Treatment Date: 05/2005
Primary Treatment Received to Date: Oral Chemo,
Create Date: 8/7/2007 6:45:57 PM
Updated: 8/10/2007
   

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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.


 

 

 

This page was last revised on October 5, 2004