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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 12 Total Results |
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| Name: |
Darlene Davis |
| Home: |
Kodiak, Alaska, USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys, Gastrointestinal, Liver, |
| Treatment Date: |
None |
| Primary Treatment Received to Date: |
Sent home under Hospice care |
| Updated: |
11/15/2001 |
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| Name: |
Cora Phyllis Dean |
| Home: |
East Greenwich, RI |
| Amyloidosis Type: |
AL Amyloidosis |
| Affected Areas: |
Kidneys, Gastrointestinal, Heart, Pulmonary |
| Hospital: |
Boston University Medical Center, USA |
| Treatment Date: |
06/2001 |
| Primary Treatment Received to Date: |
Oral Melphalan & Prednisone |
| Create Date: |
10/2/2003 5:27:52 PM |
| Updated: |
10/26/2003 |
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| Name: |
Audrey DeLange |
| Home: |
Glendale, Arizona |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
kidneys, Heart |
| Hospital: |
The Mayo Clinic, Scottsdale AZ USA |
| Treatment Date: |
00/2007 |
| Primary Treatment Received to Date: |
None |
| Create Date: |
1/4/2007 3:40:40 PM |
| Updated: |
1/5/2007 |
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| Name: |
Mark Dettmar |
| Home: |
Ewing, NJ |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Heart, |
| Hospital: |
Memorial Sloan Kettering Cancer Center |
| Treatment Date: |
9/2007 |
| Primary Treatment Received to Date: |
Au Stem Cell Transplant |
| Create Date: |
11/16/2007 12:48:31 PM |
| Updated: |
2/1/2008 |
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| Name: |
Firoz Dharamsi |
| Home: |
Calgary, AB, Canada |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys, Liver |
| Hospital: |
Princess Margaret Hospital, Toronto Canada |
| Treatment Date: |
08/2000 |
| Primary Treatment Received to Date: |
SCT |
| Updated: |
5/19/2010 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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