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9/7/2010


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Amyloidosis
Manager ™

 

Our Own Experience With This Rare Disease

Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.

To read any individual's detailed story, click on the names listed below.

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  Displaying 1 - 2 of 2 Total Results  

Name: Wanda Eastep
Home: Mt. Pleasant, TN
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Kidneys, Nervous System, Heart, Liver
Treatment Date: 03/2000
Primary Treatment Received to Date: stem cell transplant, Oral Chemo,
Create Date: 1/4/2007 12:42:30 PM
Updated: 1/5/2007
   
Name: Maria Espinoza
Home: San Diego
Amyloidosis Type: Primary AL Amyloidosis
Hospital: Univ. of Calif - San Diego
Treatment Date: May 05
Primary Treatment Received to Date: stem cell transplant,
Create Date: 7/5/2006 9:03:27 AM
Updated: 7/11/2006
   

   

 

Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.


 

 

 

This page was last revised on October 5, 2004