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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 9 Total Results |
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| Name: |
Bill F. |
| Home: |
Northern California, USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys, Nervous System, Liver |
| Hospital: |
Stanford University Hospital |
| Treatment Date: |
11/18/03 |
| Primary Treatment Received to Date: |
Stem Cell Transplant w/Chemo |
| Create Date: |
10/25/2003 10:01:44 PM |
| Updated: |
12/3/2003 |
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| Name: |
Anthony Fazzone |
| Home: |
Boston MA USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys |
| Hospital: |
Boston University Medical Center, USA |
| Treatment Date: |
06/2005 |
| Primary Treatment Received to Date: |
Stem Cell Transplant w/Chemo |
| Create Date: |
7/5/2005 3:57:09 AM |
| Updated: |
7/6/2005 |
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| Name: |
Mark Feyereisen |
| Home: |
Minneapolis MN USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys, Gastrointestinal, Heart, Muscular System |
| Hospital: |
Mayo Clinic, Rochester MN, USA |
| Treatment Date: |
Jan. 2000 |
| Primary Treatment Received to Date: |
IDOX |
| Updated: |
11/15/2001 |
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| Name: |
Toni Fielding |
| Home: |
Roseburg, Oregon USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Nervous System, Heart |
| Hospital: |
Boston University Medical Center, USA |
| Treatment Date: |
2/2003 |
| Primary Treatment Received to Date: |
Oral Chemo (Melphalan & Dex) |
| Create Date: |
2/20/2003 6:29:48 PM |
| Updated: |
2/25/2003 |
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| Name: |
Douglas Fitzgerald |
| Home: |
Norwich, CT USA |
| Amyloidosis Type: |
Secondary AA Amyloidosis |
| Affected Areas: |
Kidneys, Nervous System, Gastrointestinal, Heart, Liver |
| Hospital: |
Yale New Haven University Hospital |
| Treatment Date: |
11/2002 |
| Primary Treatment Received to Date: |
None due to other conditions and Hepatitis C |
| Create Date: |
1/8/2003 8:27:44 AM |
| Updated: |
1/8/2003 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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