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9/7/2010


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Amyloidosis
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Our Own Experience With This Rare Disease

Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.

To read any individual's detailed story, click on the names listed below.

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  Displaying 1 - 5 of 19 Total Results Next >  

Name: Pat H. Gallup
Home: Stamford CT, USA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Gastrointestinal, Heart,
Treatment Date: Jun. 1999
Updated: 11/15/2001
   
Name: SHERRY GARNER
Home: Mobile, AL USA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Kidneys, Heart
Hospital: Boston University Medical Center
Treatment Date: 9/2001
Primary Treatment Received to Date: SCT with High-Dose Chemotherapy
Create Date: 1/2/2003 9:57:59 AM
Updated: 4/23/2004
   
Name: James Garrett
Home: Akron, Oh
Amyloidosis Type: Familial
Affected Areas: kidneys
Treatment Date: nov 1994
Updated: 11/15/2001
   
Name: Mary Geoppo
Home: Belleville, IL, USA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: kidneys, gastrointestinal, Stomach, Esophagus, Eyes
Hospital: Barnes Hospital, St, Louis, MO
Treatment Date: Mar. 1985
Updated: 11/15/2001
   
Name: Ellen George
Home: Dover, NH USA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Gastrointestinal, Heart
Hospital: Boston University Medical Center, USA
Treatment Date: 02/2005
Primary Treatment Received to Date: IV Chemo & Steroids
Create Date: 3/14/2005 9:51:12 AM
Updated: 3/15/2005
   

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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.


 

 

 

This page was last revised on October 5, 2004