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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 14 Total Results |
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| Name: |
Lynn Haider |
| Home: |
Eau Claire, WI |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Heart |
| Hospital: |
The Mayo Clinic, Rochester MN USA |
| Treatment Date: |
09/2006 |
| Primary Treatment Received to Date: |
Dex, Melphalen |
| Create Date: |
1/9/2007 3:13:33 PM |
| Updated: |
2/9/2007 |
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| Name: |
Mary Lyn Hammann |
| Home: |
Seabrook, TX USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys |
| Hospital: |
M. D. Anderson Cancer Center, Houston TX USA |
| Treatment Date: |
01/2003 |
| Primary Treatment Received to Date: |
Stem Cell Transplant w/Chemo |
| Create Date: |
1/27/2005 2:07:56 PM |
| Updated: |
1/28/2005 |
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| Name: |
MJ Harwood |
| Home: |
Fruitland, ID |
| Amyloidosis Type: |
Familial |
| Hospital: |
Royal Free Hospital, London England |
| Primary Treatment Received to Date: |
treat cardiac symptoms |
| Updated: |
11/15/2001 |
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| Name: |
BARBARA HASTINGS |
| Home: |
Bath, Maine, USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
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| Treatment Date: |
12/1999 |
| Primary Treatment Received to Date: |
Oral Chemo without Steroids |
| Updated: |
11/15/2001 |
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| Name: |
Lyle Heath |
| Home: |
Phoenix AZ. |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys, Nervous System, Gastrointestinal, Heart, Liver |
| Hospital: |
Phoenix AZ USA |
| Treatment Date: |
Mar. 1988 |
| Primary Treatment Received to Date: |
Oral Chemo |
| Updated: |
11/15/2001 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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