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9/7/2010


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Amyloidosis
Manager ™

 

Our Own Experience With This Rare Disease

Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.

To read any individual's detailed story, click on the names listed below.

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  Displaying 1 - 2 of 2 Total Results  

Name: Judi Ingles
Home: Eugene, OR USA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: kidneys
Hospital: Oregon Health & Science University - Portland, Ore.
Treatment Date: 07/2005
Primary Treatment Received to Date: Stem Cell Transplant w/Chemo
Create Date: 1/18/2006 12:25:22 PM
Updated: 8/3/2006
   
Name: Carlie Irwin
Home: Randolph MA USA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Nervous System, Heart
Treatment Date: 3/2002
Primary Treatment Received to Date: Mini Allo Bone Marrow Transplant
Create Date: 9/13/2002 5:08:04 PM
Updated: 6/14/2004
   

   

 

Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.


 

 

 

This page was last revised on October 5, 2004