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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 5 Total Results |
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| Name: |
Cathy Jackson |
| Home: |
Bryan, Texas, USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Heart |
| Hospital: |
Mayo Clinic, Rochester MN, USA |
| Treatment Date: |
07/2001 |
| Primary Treatment Received to Date: |
SCT with High Dose Chemotherapy |
| Create Date: |
5/21/2002 4:42:33 AM |
| Updated: |
6/4/2003 |
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| Name: |
Mary Jarrett |
| Amyloidosis Type: |
CAA Cerebral Amyloid Angiopathy |
| Affected Areas: |
Brain |
| Hospital: |
Little Rock, AR USA |
| Treatment Date: |
Sep. 1998 |
| Updated: |
1/18/2002 |
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| Name: |
Ian Jenkins |
| Home: |
Stowmarket, U.K. |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Heart, Pulmonary |
| Hospital: |
Royal Free Hospital |
| Treatment Date: |
01/1996 |
| Primary Treatment Received to Date: |
SCT |
| Updated: |
11/15/2001 |
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| Name: |
Sandie Jessup |
| Home: |
Oakley, CA USA |
| Amyloidosis Type: |
Familial |
| Affected Areas: |
Nervous System |
| Hospital: |
Univ. of California, San Ffrancisco |
| Treatment Date: |
12/2003 |
| Primary Treatment Received to Date: |
awaiting liver transplant |
| Create Date: |
1/26/2004 7:59:36 PM |
| Updated: |
2/11/2004 |
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| Name: |
Roseann Jordan |
| Home: |
Tifton |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Gastrointestinal, Liver |
| Treatment Date: |
None |
| Primary Treatment Received to Date: |
Declined treatment |
| Create Date: |
4/28/2002 10:05:37 PM |
| Updated: |
6/17/2002 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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