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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 11 Total Results |
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| Name: |
Penny Kalani |
| Home: |
Wailuku,Hawaii |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Gastrointestinal, Heart |
| Hospital: |
Boston University Medical Center, USA |
| Treatment Date: |
12/2004 |
| Create Date: |
7/8/2004 2:03:29 PM |
| Updated: |
7/11/2004 |
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| Name: |
Aviva Kamar |
| Home: |
Israel |
| Amyloidosis Type: |
Primary AL |
| Affected Areas: |
Kidneys, Gastrointestinal, Heart, Liver |
| Treatment Date: |
2001 |
| Primary Treatment Received to Date: |
Oral Chemo, |
| Create Date: |
12/6/2005 7:49:26 AM |
| Updated: |
1/1/2006 |
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| Name: |
Carolyn Kaminski |
| Home: |
Palm Harbor, Florida USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys |
| Hospital: |
Boston University Medical Center, USA |
| Treatment Date: |
08/1997 |
| Primary Treatment Received to Date: |
Stem Cell Transplant |
| Create Date: |
7/28/2005 8:53:33 AM |
| Updated: |
8/11/2005 |
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| Name: |
Monty Kaufman |
| Home: |
Weston, CT, USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Gastrointestinal |
| Hospital: |
Mt. Sinai Hospital |
| Treatment Date: |
11/1998 |
| Primary Treatment Received to Date: |
Part of colon removed |
| Create Date: |
4/16/2002 8:56:51 AM |
| Updated: |
4/18/2002 |
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| Name: |
Jimmy Kesterson |
| Home: |
Charlottesville, VA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Heart |
| Hospital: |
NA |
| Treatment Date: |
Never |
| Primary Treatment Received to Date: |
None |
| Create Date: |
10/29/2005 7:23:16 PM |
| Updated: |
11/3/2005 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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