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9/7/2010


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Amyloidosis
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Our Own Experience With This Rare Disease

Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.

To read any individual's detailed story, click on the names listed below.

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  Displaying 1 - 5 of 20 Total Results Next >  

Name: M. Lado
Home: Orwigsburg PA USA
Amyloidosis Type: Primary AL Amyloidosis w/Myeloma
Affected Areas: kidneys, Nervous System, Gastrointestinal, Heart, Liver
Hospital: The Mayo Clinic
Treatment Date: 01/2003
Primary Treatment Received to Date: stem cell transplant, Oral Chemo, Dex, Mididrin to keep blood pressure elevated, strict monitoring of fluids(nothing more in than could come out)
Create Date: 8/12/2004 12:42:26 PM
Updated: 8/12/2004
   
Name: Linda Lane
Home: Waterford, CA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: kidneys, Nervous System, Gastrointestinal, Heart, Liver
Treatment Date: 03/1999
Primary Treatment Received to Date: Oral Chemo,
Create Date: 5/27/2004 4:18:34 PM
Updated: 5/28/2004
   
Name: Linda Lane
Home: Waterford, California, USA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Kidneys, Heart
Hospital: Valley Cancer Medical Group in Modesto, CA. USA
Treatment Date: 03/99
Primary Treatment Received to Date: I V decadron/interferon shots
Create Date: 4/30/2002 8:53:57 PM
Updated: 5/28/2004
   
Name: Jim Lang
Home: Houston Texas USA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Kidneys, Nervous System, Heart
Hospital: Mayo Clinic, Rochester MN, USA
Treatment Date: Aug. 1988
Primary Treatment Received to Date: Oral Chemo
Updated: 11/15/2001
   
Name: Judie Lasch
Home: Evanston, IL USA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Kidneys, Gastrointestinal
Hospital: Northwestern Memorial Hosp in Chicago IL USA
Treatment Date: 10/2002
Primary Treatment Received to Date: Stem Cell Transplant w/Chemo
Create Date: 5/5/2003 5:39:18 PM
Updated: 7/11/2004
   

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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.


 

 

 

This page was last revised on October 5, 2004