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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 20 Total Results |
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| Name: |
M. Lado |
| Home: |
Orwigsburg PA USA |
| Amyloidosis Type: |
Primary AL Amyloidosis w/Myeloma |
| Affected Areas: |
kidneys, Nervous System, Gastrointestinal, Heart, Liver |
| Hospital: |
The Mayo Clinic |
| Treatment Date: |
01/2003 |
| Primary Treatment Received to Date: |
stem cell transplant, Oral Chemo, Dex, Mididrin to keep blood pressure elevated, strict monitoring of fluids(nothing more in than could come out) |
| Create Date: |
8/12/2004 12:42:26 PM |
| Updated: |
8/12/2004 |
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| Name: |
Linda Lane |
| Home: |
Waterford, CA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
kidneys, Nervous System, Gastrointestinal, Heart, Liver |
| Treatment Date: |
03/1999 |
| Primary Treatment Received to Date: |
Oral Chemo, |
| Create Date: |
5/27/2004 4:18:34 PM |
| Updated: |
5/28/2004 |
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| Name: |
Linda Lane |
| Home: |
Waterford, California, USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys, Heart |
| Hospital: |
Valley Cancer Medical Group in Modesto, CA. USA |
| Treatment Date: |
03/99 |
| Primary Treatment Received to Date: |
I V decadron/interferon shots |
| Create Date: |
4/30/2002 8:53:57 PM |
| Updated: |
5/28/2004 |
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| Name: |
Jim Lang |
| Home: |
Houston Texas USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys, Nervous System, Heart |
| Hospital: |
Mayo Clinic, Rochester MN, USA |
| Treatment Date: |
Aug. 1988 |
| Primary Treatment Received to Date: |
Oral Chemo |
| Updated: |
11/15/2001 |
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| Name: |
Judie Lasch |
| Home: |
Evanston, IL USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys, Gastrointestinal |
| Hospital: |
Northwestern Memorial Hosp in Chicago IL USA |
| Treatment Date: |
10/2002 |
| Primary Treatment Received to Date: |
Stem Cell Transplant w/Chemo |
| Create Date: |
5/5/2003 5:39:18 PM |
| Updated: |
7/11/2004 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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