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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 16 Total Results |
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| Name: |
Diane Madji |
| Home: |
California, USA |
| Amyloidosis Type: |
Familial Amyloidosis |
| Affected Areas: |
Nervous System, Gastrointestinal, Liver |
| Hospital: |
Los Angeles |
| Treatment Date: |
1993 |
| Primary Treatment Received to Date: |
Liver Transplant - 1993 |
| Updated: |
3/30/2002 |
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| Name: |
Jen Marcel |
| Home: |
Springfield, PA, USA |
| Amyloidosis Type: |
Localized Amyloidosis |
| Affected Areas: |
Localized eustation tube |
| Treatment Date: |
none |
| Primary Treatment Received to Date: |
none |
| Updated: |
11/15/2001 |
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| Name: |
William Mayers |
| Home: |
St. Johns |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Hospital: |
Boston University Medical Center - Amyloid Treatment and Research Program |
| Treatment Date: |
n/a |
| Create Date: |
10/7/2007 5:51:33 PM |
| Updated: |
10/17/2007 |
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| Name: |
Victor Mayorga (en Espanol) |
| Home: |
Fresno CA USA |
| Amyloidosis Type: |
AL Amyloidosis |
| Affected Areas: |
Kidneys |
| Treatment Date: |
N/A |
| Primary Treatment Received to Date: |
n/a |
| Create Date: |
7/26/2005 3:38:09 AM |
| Updated: |
7/26/2005 |
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| Name: |
Ron McCarthy |
| Home: |
Dubuque, Iowa |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
gastrointestinal, heart, Skin |
| Hospital: |
Dubuque Internal Medicine |
| Treatment Date: |
April 1998 |
| Updated: |
3/7/2006 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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