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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 11 Total Results |
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| Name: |
George Napoda |
| Home: |
Fair Lawn, New Jersey USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Nervous System, Gastrointestinal, Heart |
| Hospital: |
Memorial Sloan Kettering NYC USA |
| Treatment Date: |
06/2004 |
| Primary Treatment Received to Date: |
stem cell transplant, |
| Create Date: |
6/7/2005 5:00:45 PM |
| Updated: |
6/10/2005 |
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| Name: |
Lorraine Napoliello |
| Home: |
Union |
| Amyloidosis Type: |
Unknown |
| Affected Areas: |
Kidneys, Gastrointestinal, Liver |
| Treatment Date: |
Did not |
| Primary Treatment Received to Date: |
Oral Chemo, |
| Create Date: |
9/6/2005 9:22:31 PM |
| Updated: |
9/9/2005 |
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| Name: |
John Napper |
| Home: |
Sydney Australia |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Heart |
| Treatment Date: |
April 2004 |
| Primary Treatment Received to Date: |
Oral Chemo, |
| Create Date: |
6/21/2004 6:55:29 PM |
| Updated: |
6/26/2004 |
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| Name: |
Russell Neal |
| Home: |
Cooter, MO |
| Amyloidosis Type: |
Familial |
| Affected Areas: |
|
| Treatment Date: |
none yet |
| Primary Treatment Received to Date: |
none |
| Create Date: |
11/30/2002 10:04:28 PM |
| Updated: |
10/1/2003 |
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| Name: |
Jo-Ann Neilsen |
| Home: |
Bethesda, MD, USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Heart |
| Hospital: |
Mayo Clinic, Rochester MN, USA |
| Treatment Date: |
11/2001 |
| Updated: |
7/12/2004 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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