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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 4 of 4 Total Results |
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| Name: |
Carole O'Connor |
| Home: |
Edmonton, Canada |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
kidneys, Nervous System, Gastrointestinal, Liver |
| Hospital: |
? |
| Treatment Date: |
12/2003 |
| Primary Treatment Received to Date: |
stem cell transplant, |
| Create Date: |
5/19/2004 3:35:50 PM |
| Updated: |
5/22/2004 |
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| Name: |
Kerry M O'Hara Jr. |
| Home: |
Florida, USA |
| Amyloidosis Type: |
Primary AL |
| Hospital: |
BUMC |
| Treatment Date: |
Feb. 1999 |
| Updated: |
11/15/2001 |
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| Name: |
Rhoda Orlen |
| Home: |
New York City, NY USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys, Heart |
| Treatment Date: |
1992 |
| Create Date: |
8/2/2002 7:22:36 PM |
| Updated: |
8/7/2002 |
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| Name: |
David Oswald |
| Home: |
Beaver Falls, PA USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Heart |
| Hospital: |
The Mayo Clinic, Rochester MN USA |
| Treatment Date: |
1/2003 |
| Primary Treatment Received to Date: |
Oral Chemo, |
| Create Date: |
3/6/2003 8:35:44 AM |
| Updated: |
3/19/2003 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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