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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 12 Total Results |
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| Name: |
Sharon Page |
| Home: |
Sydney, Australia |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys |
| Hospital: |
Royal North Shore Hospital - Sydney, AU |
| Treatment Date: |
07/2002 |
| Primary Treatment Received to Date: |
Stem Cell Transplant w/Chemo |
| Create Date: |
12/20/2004 10:23:18 PM |
| Updated: |
12/22/2004 |
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| Name: |
Georgia Pantazi |
| Home: |
Athens Greece |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Liver, Kidney |
| Hospital: |
Royal Free Hospital, London England |
| Treatment Date: |
2001 |
| Primary Treatment Received to Date: |
VAD Chemotherapy |
| Create Date: |
9/18/2002 8:32:26 AM |
| Updated: |
10/14/2002 |
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| Name: |
Kevin Parliament |
| Home: |
Vancouver, BC, Canada |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys |
| Hospital: |
Tom Baker Cancer Centre in Calgary , Alberta, Canada |
| Treatment Date: |
June/01 |
| Primary Treatment Received to Date: |
SCT plus a 2nd SCT |
| Updated: |
3/11/2004 |
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| Name: |
Pat Patterson-Greeb |
| Home: |
Denver, Colorado, USA |
| Amyloidosis Type: |
Primary AL Amyloidosis w/Myeloma |
| Affected Areas: |
Heart |
| Treatment Date: |
03/2004 |
| Primary Treatment Received to Date: |
Oral Chemo, Chemo for the M. Myeloma, and cardizem as well as Atenelol for the Amyloidosis |
| Create Date: |
8/10/2005 11:00:05 AM |
| Updated: |
8/11/2005 |
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| Name: |
Kathy Payton |
| Home: |
Charlotte, N.Carolina, USA |
| Amyloidosis Type: |
Localized Tracheobronchial Amyloidosis |
| Affected Areas: |
Trachea |
| Hospital: |
Boston Univ. Medical Center, USA |
| Treatment Date: |
Jan. 2001 |
| Primary Treatment Received to Date: |
Low Dose Localized Radiation |
| Updated: |
11/15/2001 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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