Our Own Experience With This Rare Disease

Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.

To read any individual's detailed story, click on the names listed below.

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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.