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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 15 Total Results |
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| Name: |
William Raby |
| Home: |
Toledo |
| Amyloidosis Type: |
Primary AL |
| Affected Areas: |
Heart, Liver |
| Treatment Date: |
5/2004 |
| Primary Treatment Received to Date: |
none |
| Create Date: |
4/25/2004 12:31:14 AM |
| Updated: |
7/11/2004 |
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| Name: |
Mike Rasmussen |
| Home: |
Arkansas |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys, Nervous System, Gastrointestinal |
| Hospital: |
Arkansas Cancer Research Center |
| Treatment Date: |
07/2004 |
| Primary Treatment Received to Date: |
On June 7th , clinical trials start |
| Create Date: |
6/30/2004 1:05:43 PM |
| Updated: |
1/4/2005 |
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| Name: |
Michael Rasmussen |
| Home: |
Melbourne, AR USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
kidneys, Gastrointestinal, Heart |
| Hospital: |
UAMS (University of Arkansas) |
| Treatment Date: |
March 2004 |
| Primary Treatment Received to Date: |
Lung drainage, lasix, then hospice meds |
| Create Date: |
1/4/2005 8:49:10 AM |
| Updated: |
1/4/2005 |
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| Name: |
Tim Reitzell |
| Home: |
New Athens |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Gastrointestinal, Gall Bladder |
| Hospital: |
Barnes Hospital, ST. Louis |
| Treatment Date: |
12/2007 |
| Primary Treatment Received to Date: |
Au Stem Cell Transplant; |
| Create Date: |
2/11/2008 11:20:29 PM |
| Updated: |
2/13/2008 |
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| Name: |
nicolae retevoescu |
| Home: |
Bucharets |
| Amyloidosis Type: |
Primary AL |
| Affected Areas: |
Heart |
| Treatment Date: |
no |
| Create Date: |
3/9/2004 7:05:46 AM |
| Updated: |
6/9/2004 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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