| |
Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
Back to Search Page
View by Last Name
A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P
Q | R | S | T | U | V | W | X | Y | Z | View All
| |
Displaying 1 - 5 of 21 Total Results |
Next >
|
| Name: |
Carole Scalzo |
| Home: |
Worcester, MA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Heart |
| Treatment Date: |
9/1991 |
| Primary Treatment Received to Date: |
Lasix, Digoxin |
| Create Date: |
6/18/2002 12:25:11 PM |
| Updated: |
6/22/2002 |
| |
|
| Name: |
Lee Schirm |
| Home: |
Columbia, SC |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Heart |
| Treatment Date: |
none |
| Primary Treatment Received to Date: |
none |
| Create Date: |
10/28/2004 3:28:24 PM |
| Updated: |
11/3/2004 |
| |
|
| Name: |
Betty Seay |
| Home: |
Bassett, Virginia, USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys |
| Hospital: |
University of Virginia |
| Treatment Date: |
02/2001 |
| Primary Treatment Received to Date: |
AuSCT with Hi Dose Chemo |
| Create Date: |
4/18/2002 12:59:09 PM |
| Updated: |
12/10/2003 |
| |
|
| Name: |
Priscilla Serling |
| Home: |
Tucson Arizona |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
kidneys, Nervous System, gastrointestinal, liver, |
| Hospital: |
Tucson Medical Center |
| Treatment Date: |
Feb 2000 |
| Updated: |
11/15/2001 |
| |
|
| Name: |
Richard Shapiro |
| Home: |
Sarasota, Florida |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
kidneys, Liver |
| Hospital: |
Boston University Medical Center, USA |
| Treatment Date: |
10/1998 |
| Primary Treatment Received to Date: |
stem cell transplant, Thalidimide, Dex, Biaxin(Clarithromycin) XL |
| Create Date: |
10/30/2006 11:49:54 PM |
| Updated: |
10/31/2006 |
| |
|
Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
|
