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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 7 Total Results |
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| Name: |
Bharat Taimni |
| Home: |
Udaipur,Rajasthan,India |
| Amyloidosis Type: |
Primary AL |
| Affected Areas: |
Gastrointestinal |
| Treatment Date: |
2000 |
| Primary Treatment Received to Date: |
none |
| Create Date: |
10/4/2005 9:27:44 AM |
| Updated: |
10/18/2007 |
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| Name: |
Alice H. Tapp |
| Home: |
Winchester, KY |
| Amyloidosis Type: |
Unknown |
| Affected Areas: |
Kidneys, Gastrointestinal, Liver |
| Treatment Date: |
n/a |
| Primary Treatment Received to Date: |
none |
| Create Date: |
6/13/2004 7:01:49 PM |
| Updated: |
6/16/2004 |
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| Name: |
Roy J. Taylor |
| Home: |
Gilbert Az. |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys |
| Treatment Date: |
April 00 |
| Primary Treatment Received to Date: |
Tiazac, 360 Mgs. once a day |
| Create Date: |
5/22/2002 10:45:47 AM |
| Updated: |
5/28/2002 |
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| Name: |
Jan Teague |
| Home: |
Castle Rock, CO |
| Amyloidosis Type: |
Primary AL |
| Affected Areas: |
kidneys, Nervous System, Heart, Liver |
| Treatment Date: |
08/2002 |
| Primary Treatment Received to Date: |
stem cell transplant, Oral Chemo, Dex, |
| Create Date: |
6/10/2003 8:13:17 AM |
| Updated: |
7/10/2003 |
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| Name: |
Sandra Tiffin |
| Home: |
Harrow, Middlesex, England |
| Amyloidosis Type: |
AL Amyloidosis with Poems Syndrome |
| Affected Areas: |
kidneys, Nervous System, gastrointestinal, heart, |
| Hospital: |
Royal Free Hospital, London England |
| Treatment Date: |
Oct 1997 |
| Primary Treatment Received to Date: |
SCT |
| Updated: |
11/15/2001 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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