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9/7/2010


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Amyloidosis
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Our Own Experience With This Rare Disease

Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.

To read any individual's detailed story, click on the names listed below.

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  Displaying 1 - 5 of 13 Total Results Next >  

Name: Gary Wainscott
Home: Lexington,Kentucky
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Kidneys
Hospital: The Mayo Clinic, Rochester MN USA
Treatment Date: 12/2004
Primary Treatment Received to Date: Stem Cell Transplant w/Chemo
Create Date: 12/19/2005 5:53:13 AM
Updated: 1/1/2006
   
Name: Gary Wainscott
Home: Lexington,Kentucky
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Kidneys, Heart,
Hospital: The Mayo Clinic,
Treatment Date: appx.2004
Primary Treatment Received to Date: stem cell transplant,
Create Date: 12/7/2007 5:47:17 PM
Updated: 2/1/2008
   
Name: Andrew Waugh
Home: Falkirk
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: kidneys, Heart
Treatment Date: none
Primary Treatment Received to Date: none
Create Date: 1/27/2006 2:01:45 PM
Updated: 1/28/2006
   
Name: Wilma Webb
Home: Kingston, ON Canada
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Gastrointestinal, Liver
Treatment Date: 10/2002
Primary Treatment Received to Date: Thalidimide,
Create Date: 1/11/2006 6:29:52 PM
Updated: 1/17/2006
   
Name: Pete Wellington
Home: Landenberg, PA, USA
Amyloidosis Type: Primary AL Amyloidosis
Affected Areas: Heart
Hospital: Boston Univ. Medical Center, USA
Treatment Date: Dec. 1999
Updated: 2/3/2005
   

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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.


 

 

 

This page was last revised on October 5, 2004