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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 5 Total Results |
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| Name: |
Paul York |
| Home: |
Berea, KY USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Gastrointestinal, Heart, Liver |
| Hospital: |
Cleveland Clinic, USA |
| Treatment Date: |
Jan. 1989 |
| Primary Treatment Received to Date: |
Prednisone and Alkeran |
| Updated: |
2/14/2002 |
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| Name: |
Allen Yost |
| Home: |
Hawthorne, Florida, USA |
| Amyloidosis Type: |
Unknown |
| Affected Areas: |
Pulmonary |
| Hospital: |
Alachua General Hospital (part of Shands Teaching Hospital in Gainesville, Fl) |
| Treatment Date: |
2000 |
| Updated: |
11/15/2001 |
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| Name: |
Erv Young |
| Home: |
Durham, NC USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Kidneys, Gastrointestinal |
| Hospital: |
Memorial Sloan-Kettering, NYC, USA |
| Treatment Date: |
April 1999 |
| Primary Treatment Received to Date: |
AuSCT with Hi Dose Chemo |
| Updated: |
11/15/2001 |
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| Name: |
Charles Young |
| Home: |
Northbrook, IL |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Nervous System, Heart |
| Hospital: |
Boston University Medical Center, USA |
| Treatment Date: |
04/1999 |
| Primary Treatment Received to Date: |
Stem Cell Transplant w/Chemo |
| Create Date: |
9/25/2006 3:44:38 PM |
| Updated: |
9/27/2006 |
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| Name: |
Gary Young |
| Home: |
Independence |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
kidneys |
| Treatment Date: |
05/2005 |
| Create Date: |
6/14/2005 7:06:20 PM |
| Updated: |
7/6/2005 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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