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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 111 Total Results |
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| Name: |
Hanan |
| Home: |
Texas |
| Amyloidosis Type: |
Primary AL Amyloidosis w/Myeloma |
| Affected Areas: |
Heart |
| Treatment Date: |
02/2005 |
| Primary Treatment Received to Date: |
Oral Chemo, Thalidimide, |
| Create Date: |
6/11/2005 10:16:02 AM |
| Updated: |
6/20/2005 |
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| Name: |
William G. Alexander |
| Home: |
Potomac, MD, USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Heart |
| Hospital: |
Georgetown University Medical Center |
| Treatment Date: |
12/2001 |
| Primary Treatment Received to Date: |
oral low dose melphalan, Enbrel in final weeks |
| Updated: |
3/28/2002 |
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| Name: |
Giuseppe Amarante |
| Home: |
Brooklyn NY USA |
| Amyloidosis Type: |
Secondary AA Amyloidosis |
| Affected Areas: |
Liver |
| Treatment Date: |
11/2001 |
| Primary Treatment Received to Date: |
None |
| Updated: |
2/18/2002 |
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| Name: |
Patricia Baker |
| Home: |
Auckland, New Zealand |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Gastrointestinal, Heart |
| Hospital: |
North Shore Hospital in Auckland, New Zealand |
| Treatment Date: |
11/2001 |
| Primary Treatment Received to Date: |
Oral Melphalan and Dex, Thalidomide, Renitec (for congestive heart failure) |
| Updated: |
3/16/2002 |
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| Name: |
Shirley Bellfield |
| Home: |
Washington, DC |
| Amyloidosis Type: |
Unknown |
| Affected Areas: |
kidneys |
| Treatment Date: |
1998 |
| Updated: |
11/15/2001 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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