Events


Nashville Support Group Meeting

Feb 22

Nashville Support Group Meeting

February 22, 2017

1:00pm - 3pm

 

This group is for all who seek amyloidosis support. They meet monthly at Vanderbilt University Medical Center in Nashville from 1pm – 3pm at the Vanderbilt Clinic, 2nd Floor, Room 2701.

Lunch will be provided. Please RSVP with number attending the meeting here.

February 22

March 22

April 26

May 24

June 28

July 26

August 23

September 27

October 25

November 22

December – Date TBD

We will also host a few meetings at the University of Tennessee Cancer Institute in Knoxville. Those dates will be added to the website shortly.

Please contact support group leader, Charlotte Haffner, to RSVP for our support group meetings or if you need additional information:

Tennessee AF Support Group


Rare Disease Day 2017

Feb 28

Rare Disease Day 2017

February 28, 2017

 

Join rare disease patients, caregivers and other health care advocates looking to make a difference on Tuesday, February 28th as part of Rare Disease Day®. Rare Disease Day occurs each year on the last day of February, and on this day, millions of patients and their families will share their stories to focus a spotlight on rare diseases as a global public health concern. Be a part of this exciting day and spread amyloidosis awareness. The day is observed in more than 80 nations.

Patient advocates have joined with the National Organization for Rare Disorders (NORD), the national sponsor of the day in the US, to organize this special event for legislators, legislative staff, the public and the media.

For more information about Rare Disease Day in the U.S. and how you can find an event near you, go to www.rarediseaseday.us.

For information about global activities, visit www.rarediseaseday.org.


Running the Boston Marathon, Fundraising for Amyloidosis

Apr 17

Running the Boston Marathon, Fundraising for Amyloidosis

April 17, 2017

 

Amy Menard will be running in the 2017 Boston Marathon on April 17 and fundraising in memory of Joyce Menard, who passed away from amyloidosis. This disease took the life of a loving daughter, sister, mother and grandmother.

All funds will be donated to the Amyloidosis Foundation for our research grant program. Good luck Amy!

Donate here.


Running in Memory of Aunt Nancy

May 07

Running in Memory of Aunt Nancy

May 7, 2017

 

Brian Rossetti will be running in the Pittsburgh Half Marathon on Saturday, May 7. He is raising money in memory of his Aunt Nancy, who passed away from AL Amyloidosis in 2016. The hole she left in their family is enormous. As we all know, research for this disease is minimal and the disease is rare and deadly.

We are hopeful that your donation will help fund future research for better treatments, and ultimately a cure for this devastating disease. Thank you for your support.

Donate here.


2017 Amyloidosis Foundation Golf Outing

May 13

2017 Amyloidosis Foundation Golf Outing

May 13, 2017

9:00 am

Fountains Golf & Banquet

 

Please join us Saturday, May 13th for our annual golf outing to raise funds for amyloidosis research, at Fountains Golf & Banquet in Clarkston, MI. This is a scramble – all skill levels are welcome! Last year was a great success and we hope this event is even bigger and better.

Registration starts at 8am, shotgun start at 9am. Lunch is scheduled for 2pm.

Cost for single is $110, a foursome is $400. We have many opportunities for sponsors and volunteers, please use this link for more information on how you can support this important fundraiser.

A portion of the funds raised at the event will support DMC Children’s Hospital Toy Fund for children with cancer.

Save the date and register today!


Melanie Gretzinger Memorial Half Ironman Triathlon

May 21

Melanie Gretzinger Memorial Half Ironman Triathlon

May 21, 2017

 

Alicia Conrad will be participating in her first Half Ironman Triathlon on May 21 in Chattanooga, TN.  For those unfamiliar with a Half Ironman race, it consists of a 1.2 mile swim, a 56 mile bike ride and a 13.1 mile run. She will be running in memory of Melanie Gretzinger, who died at the age of 53 from complications related to amyloidosis.  This disease took the life of a young, vibrant woman, who is missed very much.

To honor Melanie’s memory and spirit, Alicia will be using this opportunity to raise money for the Amyloidosis Foundation.

Click here to donate.

Thank you for your support!

 

Melanie Gretzinger

Melanie Gretzinger