Running in Memory of Aunt Nancy

May 07

Running in Memory of Aunt Nancy

May 7, 2017


Brian Rossetti will be running in the Pittsburgh Half Marathon on Saturday, May 7. He is raising money in memory of his Aunt Nancy, who passed away from AL Amyloidosis in 2016. The hole she left in their family is enormous. As we all know, research for this disease is minimal and the disease is rare and deadly.

We are hopeful that your donation will help fund future research for better treatments, and ultimately a cure for this devastating disease. Thank you for your support.

Donate here.

2017 Amyloidosis Foundation Golf Outing

May 13

2017 Amyloidosis Foundation Golf Outing

May 13, 2017

9:00 am

Fountains Golf & Banquet


Please join us Saturday, May 13th for our annual golf outing to raise funds for amyloidosis research, at Fountains Golf & Banquet in Clarkston, MI. This is a scramble – all skill levels are welcome! Last year was a great success and we hope this event is even bigger and better.

Registration starts at 8am, shotgun start at 9am. Lunch is scheduled for 2pm.

Cost for single is $110, a foursome is $400. We have many opportunities for sponsors and volunteers, please use this link for more information on how you can support this important fundraiser.

A portion of the funds raised at the event will support DMC Children’s Hospital Toy Fund for children with cancer.

Save the date and register today!

Melanie Gretzinger Memorial Half Ironman Triathlon

May 21

Melanie Gretzinger Memorial Half Ironman Triathlon

May 21, 2017


Alicia Conrad will be participating in her first Half Ironman Triathlon on May 21 in Chattanooga, TN.  For those unfamiliar with a Half Ironman race, it consists of a 1.2 mile swim, a 56 mile bike ride and a 13.1 mile run. She will be running in memory of Melanie Gretzinger, who died at the age of 53 from complications related to amyloidosis.  This disease took the life of a young, vibrant woman, who is missed very much.

To honor Melanie’s memory and spirit, Alicia will be using this opportunity to raise money for the Amyloidosis Foundation.

Click here to donate.

Thank you for your support!


Melanie Gretzinger

Melanie Gretzinger

Untangling Amyloidosis – Patient Webinar

Jun 01

Untangling Amyloidosis – Patient Webinar

June 1, 2017

12pm (EST)


One of the barriers patients and caregivers face in confronting this disease is confusion about how to diagnose and treat the different forms amyloidosis takes. Join us on Thursday, June 1 at 12pm (EST) for this informative presentation for patients and caregivers.

Vaishali (2)

Our webinar, narrated by Vaishali Sanchorawala, MD, a hematologist and Director of the world-renowned Boston University/Boston Medical Center Amyloidosis Center, and Frederick L. Ruberg, MD, the senior cardiologist with the group, is designed to educate the general public about amyloidosis.


Medical information will be presented in simple, straightforward terms that will be understandable without specialized training. The overall objective is to provide a clear and concise summary of the breadth of illness caused amyloidosis to empower patients and their families so that they can confront, adapt to, and hopefully defeat this debilitating disease.

This webinar is presented by the Amyloidosis Foundation and we thank our sponsor, Alnylam Pharmaceuticals.

Register here.

Bobby Black 5k for Amyloidosis Research

Jun 17

Bobby Black 5k for Amyloidosis Research

June 17, 2017


Greenville, SC


Bobby Black will forever be loved by his community. After his amyloidosis diagnosis, against all odds, he was blessed to have 8 additional years to shine, to smile, to make a difference. On Saturday, June 17, 2017 at Conestee Park in Greenville, SC we will honor his memory with a 5k race, with all funds donated to the Amyloidosis Foundation. Details here.

Here is a short video to see what an amazing teacher he was.

To honor his legacy, his friends and family want to give back by hosting this event to support amyloidosis research for a cure. Please help raise money for the Amyloidosis Foundation and help us, help others. Thank you for your support.

Registration or Donation link here.

“I Ran for Joann” 5k Run & 2 Mile Walk

Jul 22

“I Ran for Joann” 5k Run & 2 Mile Walk

July 22, 2017

9:00 am

Runkle Lake Park


The Amyloidosis Foundation will host a 5k run and 2 mile walk on Saturday, July 22, 2017 in honor of Joann Waldo. The event will take place in the Upper Peninsula of Michigan, during Crystal Fall’s Summer Fest.

Registration will begin at 7:00am at Runkle Lake Park (race starts at 9:00am). All pre-registered participants will receive a “I Ran for Joann” t-shirt for participating. After running or walking, participants will cool down and fuel up with assorted snacks and refreshments and will have the opportunity to participate in basket raffles.

All proceeds will be used by the Amyloidosis Foundation for patient support, education, awareness and research leading to a cure.

Register here.

2017 Pittsburgh Amyloidosis Research Benefit

Oct 27

2017 Pittsburgh Amyloidosis Research Benefit

October 27, 2017


Pittsburgh, PA


The Amyloidosis Foundation is proud to announce the 2017 Amyloidosis Research Benefit in Pittsburgh, PA on Friday, October 27. Our goal is to raise donations for the AF Research Grant Program. Since 2005, the foundation has awarded over $1.4 million to young researchers pursuing a cure for amyloidosis. Dr. Darcy Tannehill, amyloidosis patient, Pittsburgh resident and member of the Amyloidosis Foundation Board of Directors, is the Chairwoman for our fundraiser.

The event will be at the Montour Heights Country Club starting at 5:30pm. The evening will include strolling appetizers, dinner, live music, cash bar and a silent auction. Proceeds from this event will allow us to continue our support for ground-breaking medical research.

Join us on this special night as we raise funds for research and celebrate our amyloidosis community.

Tickets are $175 and we have tables of eight for $1400, click here to purchase. Event sponsorships are also available, please use this link.  Hotel reservation information will be available soon.


For more information, please contact the Amyloidosis Foundation at 1-877-AMYLOID.

Purchase tickets here