Nashville Support Group Meeting

Jul 27

Nashville Support Group Meeting

July 27, 2017

12:15pm - 2:30pm


This group is for all who seek amyloidosis support. Our next meeting is Thursday, July 27. We will meet at Vanderbilt University Medical Center – East from 12:15pm – 2:30pm in room 8380-B.

Lunch will be provided. Please RSVP with number attending the meeting here.

You may also register for our meetings online here.


We will also host a few meetings at the University of Tennessee Cancer Institute in Knoxville. The next date is October 28.

Please contact our support group leader, Charlotte Haffner, if you need additional information:


Birthday Spin Event for Amyloidosis Research

Aug 18

Birthday Spin Event for Amyloidosis Research

August 18, 2017



Join Kelli Heald and her friends at GritCycle in Monarch Beach, CA on Friday, August 18 to celebrate her birthday and once again raise funds for the Amyloidosis Foundation Research Grant Program.

Contact GritCycle directly to reserve your bike, cost is $50/per person. The phone number is (949) 338-5102. Website link is here.

If you can’t attend and want to donate, please do so here. Share with your friends and family, to create awareness of this rare disease.

Thank you for your support!

“Run for Your Life!” – Walk/Run

Oct 21

“Run for Your Life!” – Walk/Run

October 21, 2017


Independence Oaks County Park


We cordially invite you to participate in the Amyloidosis Foundation Run for Your Life! 5k/10k Walk/Run. This event will raise money to provide medical research and will help fund programs that benefit amyloidosis patients and their families.

The event will be held Saturday, October 21, 2017 at Independence Oaks County Park in Clarkston, MI. The 10k will kick off at 9:30 a.m. followed by the 5k at 9:45 a.m. Awards will be given for top qualifiers as well as best costume. Race includes food and drink at the finish line plus Chronotrack timing by Newton Timing & Race Services Company.

Register early for lowest prices and receive:

  • Run for Your Life! Long sleeve tech shirt
  • Finisher’s medal

Race Information Links Below:


**To volunteer at this event, please complete the form below**

Contact Us

2017 Pittsburgh Amyloidosis Research Benefit

Oct 27

2017 Pittsburgh Amyloidosis Research Benefit

October 27, 2017


Pittsburgh, PA


The Amyloidosis Foundation is proud to announce the 2017 Amyloidosis Research Benefit in Pittsburgh, PA on Friday, October 27. Our goal is to raise donations for the AF Research Grant Program. Since 2005, the foundation has awarded over $1.4 million to young researchers pursuing a cure for amyloidosis. Dr. Darcy Tannehill, amyloidosis patient, Pittsburgh resident and member of the Amyloidosis Foundation Board of Directors, is the Chairwoman for our fundraiser.

The event will be at the Montour Heights Country Club starting at 5:30pm. The evening will include strolling appetizers, dinner, live music, cash bar and a silent auction. Proceeds from this event will allow us to continue our support for ground-breaking medical research.

Join us on this special night as we raise funds for research and celebrate our amyloidosis community.

Tickets are $175 and we have tables of eight for $1400, click here to purchase. Event sponsorships are also available, please use this link.

Hotel reservation information

Sheraton Pittsburgh Airport, 1160 Thorn Run Road, Coraopolis, PA  15108

Phone: 412-262-2400 (hotel) or 866-716-8134 (reservations)

**Please mention the Pittsburgh Amyloidosis Research Benefit when making reservations**

Rooms are reserved for check-in on October 26th and check out on October 28th. The room rate is $118 per night. The hotel is 5 minutes from the event and there is a  complimentary shuttle to the benefit. Reservations must be made by September 26th.


For more information, please contact the Amyloidosis Foundation at 1-877-AMYLOID.

Purchase tickets here