“Run for Your Life!” – Walk/Run

Oct 21

“Run for Your Life!” – Walk/Run

October 21, 2017


Independence Oaks County Park


We cordially invite you to participate in the Amyloidosis Foundation Run for Your Life! 5k/10k Walk/Run. This event will raise money to provide medical research and will help fund programs that benefit amyloidosis patients and their families.

The event will be held Saturday, October 21, 2017 at Independence Oaks County Park in Clarkston, MI. The 10k will kick off at 9:30 a.m. followed by the 5k at 9:45 a.m. Awards will be given for top qualifiers as well as best costume. Race includes food and drink at the finish line plus Chronotrack timing by Newton Timing & Race Services Company.

Register NOW to receive:

  • Run for Your Life! Long sleeve tech shirt
  • Custom medal at the finish

Race Information Links Below:




Penny’s Ride for the Cure

Oct 21

Penny’s Ride for the Cure

October 21, 2017

2 p.m.

Riverbluff Park


Penny’s Ride was created to honor the memory of Penny Carney Bevilaqua, who passed from amyloidosis in 2016. This ride, started by her family, will be an annual fun, athletic, family event to raise funds for the Amyloidosis Foundation plus spread amyloidosis awareness in her community.

Please join us on Saturday, October 21, 2017 for Penny’s Ride for the Cure at the scenic Riverbluff Park, beside the Cumberland River in Ashland City, Tennessee (her hometown). There is an 11 or 19 mile course for skilled riders and then a Fun Ride, about 2 – 3 miles for everyone else (children, teens, etc). Get your bikes ready to ride for Penny! Her family will lead the Fun Ride.

‘Everday is a gift’ was one of Penny’s favorite sayings. Please support this event in her honor and help raise awareness of amyloidosis.

Register here for the event.



The 2nd Annual Pittsburgh Amyloidosis Research Benefit

Oct 27

The 2nd Annual Pittsburgh Amyloidosis Research Benefit

October 27, 2017


Pittsburgh, PA


The Amyloidosis Foundation is proud to announce the 2nd Annual Amyloidosis Research Benefit in Pittsburgh, PA on Friday, October 27, 2017. Our goal is to raise donations for the AF Research Grant Program. Since 2005, the foundation has awarded over $1.4 million to young researchers pursuing a cure for amyloidosis. Dr. Darcy Tannehill, amyloidosis patient, Pittsburgh resident and member of the Amyloidosis Foundation Board of Directors, is the Chairwoman for our fundraiser.

The event will be at the Montour Heights Country Club starting at 5:30pm. The evening will include strolling appetizers, dinner, live music, cash bar and a silent auction. Proceeds from this event will allow us to continue our support for ground-breaking medical research.

Join us on this special night as we raise funds for research and celebrate our amyloidosis community.

Tickets are $175 and we have tables of eight for $1400, click here to purchase. Event sponsorships are also available, please use this link.

Hotel reservation information

Sheraton Pittsburgh Airport, 1160 Thorn Run Road, Coraopolis, PA  15108

Phone: 412-262-2400 (hotel) or 866-716-8134 (reservations)

**Please mention the Pittsburgh Amyloidosis Research Benefit when making reservations**

Rooms are reserved for check-in on October 26th and check out on October 28th. The room rate is $118 per night. The hotel is 5 minutes from the event and there is a  complimentary shuttle to the benefit. Reservations must be made by September 26th.


For more information, please contact the Amyloidosis Foundation at 1-877-AMYLOID.

Purchase tickets here

Special thanks to our event sponsors:

Hills and Hollers Half Marathon & 5K

Nov 11

Hills and Hollers Half Marathon & 5K

November 11, 2017

8:00 am for 10:00 am start

Burwood Community Center


Join us at the 5th annual Hills and Hollers Half Marathon & 5K on Saturday, November 11 at the Burwood Community Center in Thompson’s Station, TN. This event supports amyloidosis patients and their families. This is a great event for the whole family – they even have a Little Holler Run! After the races, participants will enjoy refreshments while bidding on items in the silent auction.

Present Troubles Racing (a nonprofit organization) runs the event and raises funds by organizing multi-sport events (triathlons, duathlons, marathons, 1/2 marathons, bike rides, etc) in Tennessee. It is their goal to make others aware of this disease and raise financial support to help those affected by amyloidosis.  All funds raised will be split between the Amyloidosis Foundation, local Amyloidosis Foundation Support Groups, and Vanderbilt Amyloidosis Multidisciplinary Program patients. Thank you to Prothena for sponsoring this event.

Register here.