N. California Support Group Meeting

N. California Support Group Meeting

This support group welcomes all patients, families and friends. They will meet on Saturday, October 21 from 10am – 2pm. The meeting will take place at Stanford, 875 Blake Wilbur Dr., 2nd floor conference room. Refreshments provided.

Please RSVP by October 16 with number attending the meeting here.


Tennessee Support Group Meeting

Tennessee Support Group Meeting

This group is for all who seek amyloidosis support. We will host a meeting at the University of Tennessee Cancer Institute in Knoxville. The next date is October 28, the meeting will be held from 10am – 2pm. 

Please contact our support group leader, Charlotte Haffner, if you need additional information: charhaffner@gmail.com.

 


The 2nd Annual Pittsburgh Amyloidosis Research Benefit

The 2nd Annual Pittsburgh Amyloidosis Research Benefit

The Amyloidosis Foundation is proud to announce the 2nd Annual Amyloidosis Research Benefit in Pittsburgh, PA on Friday, October 27, 2017. Our goal is to raise donations for the AF Research Grant Program. Since 2005, the foundation has awarded over $1.4 million to young researchers pursuing a cure for amyloidosis. Dr. Darcy Tannehill, amyloidosis patient, Pittsburgh resident and member of the Amyloidosis Foundation Board of Directors, is the Chairwoman for our fundraiser.

The event will be at the Montour Heights Country Club starting at 5:30pm. The evening will include strolling appetizers, dinner, live music, cash bar and a silent auction. Proceeds from this event will allow us to continue our support for ground-breaking medical research.

Join us on this special night as we raise funds for research and celebrate our amyloidosis community.

Tickets are $175 and we have tables of eight for $1400, click here to purchase. Event sponsorships are also available, please use this link.

 

Hotel reservation information

Sheraton Pittsburgh Airport, 1160 Thorn Run Road, Coraopolis, PA  15108

Phone: 412-262-2400 (hotel) or 866-716-8134 (reservations)

The hotel is 5 minutes from the event and there is a  complimentary shuttle to the benefit.

 

Contact                  

For more information, please contact the Amyloidosis Foundation at 1-877-AMYLOID.

Purchase tickets here

Special thanks to our event sponsors:


Amyloidosis Foundation Announces New Members to Board of Directors

Amyloidosis Foundation Announces New Members to Board of Directors

Sheryl Kernodle, RN has called Vanderbilt Medical Center home for the last seven years, where she has worked as a Cardiac nurse in the Cardio-Oncology, Advanced Heart Failure/Amyloidosis clinic at the Vanderbilt Heart and Vascular Institute in Nashville, TN. She received her nursing degree in 1993 from Aquinas Junior College in Nashville and has over 24 years of experience, with the last 17 focusing on Cardiac sub-specialties.

In 2014, Sheryl was given the opportunity to work with Daniel Lenihan, MD at Vanderbilt as his clinic nurse. Dr. Lenihan (who transferred to Washington University School of Medicine in St. Louis, MO in August 2017) was one of the Cardiologists at VHVI that specialized in the care of patients with amyloidosis. She had never heard of amyloidosis prior to coming to Vanderbilt and was very interested in learning all she could about this rare disease. Dr. Lenihan provided the resource tools needed to become knowledgeable as well as developing the nursing skills needed to care for amyloidosis patients.

Sheryl is currently working on a resource manual for the nursing staff at Vanderbilt, as well as being a representative for Cardio-Oncology in the VHVI Unit Board Charter, where staff members meet monthly to collaboratively make decisions that can improve patient care, clinical practice and enhancement of professional opportunities. She attended the American Association of Nurse Practitioners Conference (AANP) in June 2017 as a volunteer for the Amyloidosis Foundation and looks forward to attending more conferences in the future.

Sheryl joined the Board of Directors of the Amyloidosis Foundation in 2017. She is married and enjoys cooking, gardening and her favorite exercise is walking.

 

Mark Sutherland is a Financial Advisor/ CFP, CRPC with LPL Financial in Southfield, Michigan. He helps his clients identify and plan all aspects of their financial needs – including investments, retirement planning, insurance, and taxes.

Mark attended Michigan State University, where he graduated with a B.A. in Business Administration in 1979.

On campus, he played varsity baseball and helped lead his team to a Big Ten Championship his senior year. He was also an active member of the Psi Upsilon Fraternity.

In 1983 he joined E.F Hutton and earned his securities license. Over the following 34 years of his career, he continued to expand his education by earning his Certified Financial Planner (CFP) designation in 1997 and Chartered Retirement Planning Counselor (CRPC) in 2013.

Mark has supported the Amyloidosis Foundation for many years, attending our annual golf outing events. He began working with AF President Mary O’Donnell and Treasurer Dante Burchi regarding investment recommendations for the foundation since 2015 and became a member of the Board of Directors in 2017.

Mark and his wife Carol have three children and enjoy family outings, golf, volunteering, and following MSU sports.

We welcome Sheryl and Mark to our team and appreciate their support!

 


Fall 2017 Amyloidosis Foundation Newsletter

Fall 2017 Amyloidosis Foundation Newsletter

Read our Fall newsletter to find all the latest news and information you need from the Amyloidosis Foundation:

  • Purchase your tickets!  Pittsburgh Amyloidosis Research Benefit, October 27
  • 2018 International Symposium on Amyloidosis will be in Japan, March 26 – 29
  • See photos from the #Ride4Tres fundraiser in California, which raised over $18,000!
  • Amyloidosis Foundation partners in Multiple Myeloma Rounds in Chicago
  • Our 1st 5k/10k Run/Walk will be October 21 in Michigan – join in the fun!
  • We have a NEW Facebook page! Details in the newsletter, please ‘follow us’
  • Northern Michigan “I Ran for Joann” fundraiser raises over $13,000 at 1st event!
  • #GivingTuesday is November 28 – join us on this annual day of giving

Click here to read & stay informed!


Travel Grants Available for 2018 International Amyloidosis Symposia

Travel Grants Available for 2018 International Amyloidosis Symposia

The foundation is dedicated to encouraging young scientists that show an interest in amyloidosis research, by providing travel grants to physicians and researchers who have completed their medical doctorate or fellowship within the past 10 years. These grants enable participation in the bi-annual International Amyloidosis Symposium.

The XVI International Symposia on Amyloidosis is March 26 – 29, 2018 in Japan. Please use the link below to apply for a travel award. Deadline is December 15, 2017.

2018 Travel Award Application


Hills and Hollers Half Marathon & 5K

Hills and Hollers Half Marathon & 5K

Join us at the 5th annual Hills and Hollers Half Marathon & 5K on Saturday, November 11 at the Burwood Community Center in Thompson’s Station, TN. This event supports amyloidosis patients and their families. This is a great event for the whole family – they even have a Little Holler Run! After the races, participants will enjoy refreshments while bidding on items in the silent auction.

Present Troubles Racing (a nonprofit organization) runs the event and raises funds by organizing multi-sport events (triathlons, duathlons, marathons, 1/2 marathons, bike rides, etc) in Tennessee. It is their goal to make others aware of this disease and raise financial support to help those affected by amyloidosis.  All funds raised will be split between the Amyloidosis Foundation, local Amyloidosis Foundation Support Groups, and Vanderbilt Amyloidosis Multidisciplinary Program patients. Thank you to Prothena for sponsoring this event.

Register here.

 


“Run for Your Life!” – Walk/Run

“Run for Your Life!” – Walk/Run

We cordially invite you to participate in the Amyloidosis Foundation Run for Your Life! 5k/10k Walk/Run. This event will raise money to provide medical research and will help fund programs that benefit amyloidosis patients and their families.

The event will be held Saturday, October 21, 2017 at Independence Oaks County Park in Clarkston, MI. The 10k will kick off at 9:30 a.m. followed by the 5k at 9:45 a.m. Awards will be given for top qualifiers as well as best costume. Race includes food and drink at the finish line plus Chronotrack timing by Newton Timing & Race Services Company.

Register NOW to receive:

  • Run for Your Life! Long sleeve tech shirt
  • Custom medal at the finish

Race Information Links Below:

 

 

 


#Ride4Tres Event Smashes Fundraising Goal!

#Ride4Tres Event Smashes Fundraising Goal!

Thank you again to Kelli Heald, who chose to celebrate her birthday on August 18 doing what she loves – spinning with friends and family at GritCycle – and raising funds for amyloidosis research. This was the second year for this event and they raised over $18,000 for #Ride4Tres – in memory of her husband, Tres.

With over 45 riders and lots of community support in Monarch Beach, CA, everyone came out on this important day to raise amyloidosis awareness.

Thanks to all of the donors, riders, sponsors and employees at GritCycle for sharing her passion to find a cure for amyloidosis.


Penny’s Ride for the Cure

Penny’s Ride for the Cure

Penny’s Ride was created to honor the memory of Penny Carney Bevilaqua, who passed from amyloidosis in 2016. This ride, started by her family, will be an annual fun, athletic, family event to raise funds for the Amyloidosis Foundation plus spread amyloidosis awareness in her community.

Please join us on Saturday, October 21, 2017 for Penny’s Ride for the Cure at the scenic Riverbluff Park, beside the Cumberland River in Ashland City, Tennessee (her hometown). There is an 11 or 19 mile course for skilled riders and then a Fun Ride, about 2 – 3 miles for everyone else (children, teens, etc). Get your bikes ready to ride for Penny! Her family will lead the Fun Ride.

‘Everday is a gift’ was one of Penny’s favorite sayings. Please support this event in her honor and help raise awareness of amyloidosis.

Register here for the event.

 

 

Oct 21

"Run for Your Life!" 5k/10k

Clarkston, MI

More
Oct 21

Penny's Ride for the Cure

Ashland City, TN

More
Oct 27

2017 Pittsburgh Research Benefit

Montour Heights Country Club

More
Nov 11

Hills and Hollers Half Marathon & 5K

Thompson's Station, TN

More