Join rare disease patients, caregivers and other health care advocates looking to make a difference on Tuesday, February 28th as part of Rare Disease Day®. Rare Disease Day occurs each year on the last day of February, and on this day, millions of patients and their families will share their stories to focus a spotlight on rare diseases as a global public health concern. Be a part of this exciting day and spread amyloidosis awareness. The day is observed in more than 80 nations.
Patient advocates have joined with the National Organization for Rare Disorders (NORD), the national sponsor of the day in the US, to organize this special event for legislators, legislative staff, the public and the media.
For more information about Rare Disease Day in the U.S. and how you can find an event near you, go to www.rarediseaseday.us.
For information about global activities, visit www.rarediseaseday.org.