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7151 N. Main St. Ste. 2 Clarkston, MI 48346
248-922-9610

Missouri

Center for Advanced Medicine
Dates TBD
Contact: Aleana Evans
(314)273-2255
Parking Information
Center for Advanced Medicine
4921 Parkview Place, 3rd Floor
Farrell Conference Room #1
St. Louis, MO 63110

New York

The Weill Cornell Medicine Center
The Weill Cornell Medicine Myeloma Center holds free myeloma support group meetings virtually on the 2nd and 4th Tuesday of every month from 1:00-2:00 pm. These groups can offer patients a safe and supportive environment to connect with fellow myeloma patients and learn new information on managing health and concerns associated with the disease. You can find additional information about upcoming meetings on our social media channels, as well as by calling the Myeloma Center or asking your providing physician.
To register for the group, please email Chelsea Cerillo, LCSW at
[email protected]
Link to More Info Here

Northern California

Northern California AF Support Groups
This support group welcomes all patients, families, and friends. They meet quarterly. Refreshments provided.
Link to Support Groups

Oregon & Washington

PNW Support Group Meeting
We support patients & caregivers throughout the Pacific Northwest to live life to the fullest while managing all types of amyloidosis.
Link to Website
Questions please contact: Sally Cox at
[email protected]

RARE Toolkits

The Amyloidosis Foundation is a member of the Global Genes Foundation Alliance. They have generously agreed to allow us to share a link to their RARE Toolkits.

These provide individuals with usable information on a variety of topics related to living with and/or advocating for rare disease patients. RARE Toolkits are created in collaboration with key rare disease stakeholders that have developed a vast array of subject matter expertise and believe in the importance of sharing these best practices.

Please use these resources to help you and your family:
RARE Toolkits
Air Charity Network
Air Charity Network is a charitable organization that provides access for people in need who are seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis.
Mercy Medical Airlift
Provides information about all forms of charitable, long-distance medically-related transportation and provides referrals to all appropriate sources of help available in the national charitable medical transportation network.
Corporate Angel Network
Matches cancer patients in need of travel with private corporate jet schedules. Information for patients and potential corporate sponsors.
Hope Lodge
Is a program of the American Cancer Society that offers a safe, supportive, and self-sufficient home away from home for those in active outpatient amyloidosis and cancer treatment.

Other Resources

Caregiver Resources

This binder was designed by the Amyloidosis Foundation staff, a team that strives to make caregiving easier for caregivers and patients. Each section has links to PDF files that are designed so that you can print your own copy and keep it in a 3 ring binder to take with you to doctor’s appointments. If you do not have access to a printer, we will mail you an assembled binder. Just email your request for a binder to:
[email protected].