Skip to main content
Edgar Baxton II

Featured Patient Story

Edgar Baxton II

Edgar Baxton, 65, is a health teacher at the Fort Dodge Middle School in Fort Dodge, Iowa. He also coaches junior varsity volleyball at Fort Dodge Senior High. He was diagnosed with amyloidosis in 2015 and needed a heart and liver transplant to save him.

What transpired through his medical journey was a true out-of-body experience that changed his life physically, mentally and spiritually, according to Baxton.

“It makes you become very aware that there is more to life than what we have right here,” Baxton said. “Everybody wants to live today, but there is a life beyond this life.”

read more

Latest News Story Headlines

Alnylam Announces U.S. Food and Drug Administration Acceptance of Supplemental New Drug Application for Vutrisiran for the Treatment of ATTR Amyloidosis with Cardiomyopathy

Nov 25, 2024

− Prescription Drug User Fee Act (PDUFA) Date Set for March 23, 2025 −

read full article
Attruby™ (acoramidis), a Near Complete TTR Stabilizer (≥90%), approved by FDA to Reduce Cardiovascular Death and Cardiovascular-related Hospitalization in ATTR-CM Patients

11.22.2024 at 7:12 PM EST

read full article
Intellia Announces First Clinical Evidence from Ongoing Phase 1 Study that Nexiguran Ziclumeran (nex-z), an In Vivo CRISPR/Cas9-Based Gene Editing Therapy, May Favorably Impact Disease Progression in Transthyretin (ATTR) Amyloidosis

CAMBRIDGE, Mass., Nov. 16, 2024 (GLOBE NEWSWIRE) -- Intellia Therapeutics, Inc.

read full article

Calendar & Upcoming Events

There are no upcoming scheduled events at the moment in next 30 days.

Amyloidosis Videos

Our Latest Webinar

Updates in AL amyloidosis: Fast Forward in 2024!

Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY

Sign Up for the Latest Updates

Get news from Amyloidosis Foundation
in your inbox

By submitting this form, you are consenting to receive marketing emails from : Amyloidosis Foundation, 7151 N. Main St., Suite 2, Clarkston, MI, 48346, US, https://www.amyloidosis.org. You can revoke your consent to receive emails at any time by using SafeUnsubscribe© link, found at the bottom of every email. Emails are serviced by Constant Contract.