7151 N. Main St. Ste. 2 Clarkston, MI 48346
248-922-9610

2025 Virtual Run/Walk

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2025 Summer Newsletter

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AL Amyloidosis

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Amyloidosis Awareness Items

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Webinar: Updates in AL Amyloidosis

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Hereditary Amyloidosis

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The Amyloidosis Channel

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Patient Education Activity

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What is Amyloidosis?

AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.

Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.

Featured Patient Story

Aubrey’s Journey

Aubrey Christmas

Written by Jaime, Wife and Caregiver I am writing to share a little about the journey my husband and I have been on since his diagnosis in October 2013. Aubrey was diagnosed with hATTR. We had prayed that this disease that claimed the lives of his grandmother, father, brother, aunties, uncles and cousins would somehow skip him, but that was...
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2025 Spring Newsletter

May 21, 2025

Be sure to catch up on the latest happenings in our fall newsletter here!

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Calendar & Upcoming Events

Nashville Support Group

When


October 11, 2025    

11:00 am - 2:00 pm

Where

Del Frisco's Grille
1201 Demonbreun Street, Ste 104, Nashville, TN

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Webinar: Office Hours: Dr. Mazen Hanna Cardiologist from the Cleveland Clinic

When


October 8, 2025    

6:00 pm - 7:00 pm

Webinar Session: Wednesday, October 8, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Office Hours: Dr. Mazen Hanna Cardiologist from the Cleveland Clinic

Speaker: Mazen Hanna, MD, Cardiology, Cleveland Clinic

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Webinar: Open Discussion with Dan Lier

When


September 24, 2025    

6:00 pm - 7:00 pm

Webinar Session: Wednesday, September 24, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Title:  Open Discussion with Dan Lier

Speaker: Dan Lier, Success Coach

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Amyloidosis Videos

This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.

Featured Product

Zebra T Shirt

FLASH SALE:  Pick up our Zebra Shirt for $15.00 while supplies last! Wear our zebra logo shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester
$15.00
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Our Latest Webinar

The Changing Paradigm of Amyloidosis Treatment

Jeffrey Zonder, MD

Karmanos Cancer Institute, Detroit, MI

July 10, 2025

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