What is Amyloidosis?
AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Featured Patient Story
Against All Odds

Dr. Leslie Schumacher-McKee
My name is Dr. Leslie Schumacher-McKee and I am 39 years old. After the birth of my second son 3 ½ years ago, I started experiencing increased bruising, muscle (particularly calf) pain, abdominal pain, and lethargy. In August of 2011, after 5 months of numerous appointments with multiple doctors and physical therapy (mostly attributing my symptoms to being a working...
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2025 Spring Newsletter

May 21, 2025
Be sure to catch up on the latest happenings in our fall newsletter here!
Calendar & Upcoming Events
From Super Bowl Champ to Rare Disease Advocacy
Webinar Session: Wednesday, October 22, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
From Super Bowl Champ to Rare Disease Advocacy
Speaker: Art Still, KC Chiefs & Still4Life.org
From Policy to Patients: Understanding the Regulatory Process
Webinar Session: Wednesday, October 15, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
From Policy to Patients: Understanding the Regulatory Process
Speaker: Kathi Luis, Amyloidosis Foundation
Nashville Support Group
Amyloidosis Videos
This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.
Featured Product
Champion T-Shirt

Wear our shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester Color: Dark Gray
Wear our shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester Color: Dark Gray
$25.00
S, M, L, XL, and XXL