Each year, landmarks, homes, and communities across the country light up in red to honor those affected by amyloidosis and to raise awareness of this rare disease. Light the Night for Amyloidosis is a simple but powerful way to spark conversation, encourage earlier diagnosis, and show solidarity with patients, caregivers, families, and clinicians who are part of our community.

We invite supporters everywhere to participate—whether that means illuminating your porch light, asking a local building or bridge to light up, or sharing photos on social media to spread the word. Every light symbolizes hope and helps amplify the message that awareness saves lives.

To make participation easier, the Amyloidosis Foundation has created a Light the Night for Amyloidosis outreach toolkit. This free toolkit includes:

• Sample request letters and emails you can send to city halls, landmarks, and organizations
• Tips for identifying potential lighting locations in your area
• Social media post ideas to help you promote your event
• Ideas for community engagement and storytelling

With these ready-to-use resources, anyone can take action locally and help expand the impact of this movement.

We encourage you to join us for the month of March in lighting the night this year. Together, we can brighten the path toward earlier recognition, improved care, and greater support for everyone affected by amyloidosis.

Thank you for being a vital part of our community and for helping us shine a light—literally and figuratively—on amyloidosis.

Download the toolkit and learn how to get involved today. Click HERE for toolkit.

Webinar Session: Wednesday, December 24th, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Looking Back at 2025 and Preparing for what’s next in 2026

Speaker: Dr. Stacey Goodman, Vanderbilt University

Webinar Session: Wednesday, December 17th, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Living Forward with Amyloidosis: Practical tips that make a difference

Speaker: Sally Cox, AL amyloidosis patient and leader of the Pacific NW Amyloidosis Support Group