Featured Patient Story
Mackenzie Boedicker
In April of 2017, I was diagnosed at the age of 23 with AL amyloidosis.
I noticed a lump in the back of my throat that had been increasing in size. I saw an ENT who incorrectly diagnosed the lump as seasonal allergies. A second ENT eventually did a biopsy of the lump and the results indicated that the tissue had characteristics of amyloid. I was referred to a hematologist who performed a bone marrow biopsy and confirmed the diagnosis. For a second opinion, I met with an amyloidosis specialist at the Mayo Clinic in Rochester, MN.
read moreLatest News Story Headlines
Acoramidis Shows Statistically Significant Improvements in Cardiovascular Outcomes in Patients with Variant ATTR-CM
PALO ALTO, Calif., March 31, 2025 (GLOBE NEWSWIRE) -- BridgeBio Pharma, Inc.
Intellia Therapeutics Announces FDA Regenerative Medicine Advanced Therapy (RMAT) Designation Granted to Nexiguran Ziclumeran (nex-z) for the Treatment of Transthyretin (ATTR) Amyloidosis with Cardiomyopathy
CAMBRIDGE, Mass., March 26, 2025 (GLOBE NEWSWIRE) -- Intellia Therapeutics, Inc.
Alnylam Announces FDA Approval of AMVUTTRA® (vutrisiran), the First RNAi Therapeutic to Reduce Cardiovascular Death, Hospitalizations and Urgent Heart Failure Visits in Adults with ATTR Amyloidosis with Cardiomyopathy (ATTR-CM)
Mar 20, 2025
− Novel Mechanism of Action Delivers Rapid Knockdown of Transthyretin, Addressing the Disease at its Source –
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Patient Spotlight - Up Close & Personal with Manny Magos
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Ribbon Awareness Pin$8.00Wear your pin proudly and show everyone you are an amyloidosis ambassador.
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Featured Product
Zebra T Shirt$15.00FLASH SALE: Pick up our Zebra Shirt for $15.00 while supplies last! L, XL & XXL - SOLD OUT!
Wear our zebra logo shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, MShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Logo T Shirt$15.00FLASH SALE: Pick up our classic T-Shirt for $15.00 while supplies last!
Wear our shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Updates in AL amyloidosis: Fast Forward in 2024!
Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY
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