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Featured Patient Story

David Zarzour

In 2018, I had what I thought was a particularly bad case of bronchitis. As I regularly get sick in the winter, I didn’t think too much about it, except I was unusually weak, and tired. I also started sleeping in a chair, as I couldn’t breathe lying down.

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Latest News Story Headlines

Alnylam Announces U.S. Food and Drug Administration Acceptance of Supplemental New Drug Application for Vutrisiran for the Treatment of ATTR Amyloidosis with Cardiomyopathy

Nov 25, 2024

− Prescription Drug User Fee Act (PDUFA) Date Set for March 23, 2025 −

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Attruby™ (acoramidis), a Near Complete TTR Stabilizer (≥90%), approved by FDA to Reduce Cardiovascular Death and Cardiovascular-related Hospitalization in ATTR-CM Patients

11.22.2024 at 7:12 PM EST

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Intellia Announces First Clinical Evidence from Ongoing Phase 1 Study that Nexiguran Ziclumeran (nex-z), an In Vivo CRISPR/Cas9-Based Gene Editing Therapy, May Favorably Impact Disease Progression in Transthyretin (ATTR) Amyloidosis

CAMBRIDGE, Mass., Nov. 16, 2024 (GLOBE NEWSWIRE) -- Intellia Therapeutics, Inc.

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Calendar & Upcoming Events

Webinar: Kicking off your new year right!

 Webinar Session, Wednesday, Jan. 1st, 2025 at 6 PM (ET)

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Webinar: Amyloidosis Diet & Nutrition

 Webinar Session, Wednesday, Jan. 8th, 2025 at 6 PM (ET)

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Updates in AL amyloidosis: Fast Forward in 2024!

Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY

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