7151 N. Main St. Ste. 2 Clarkston, MI 48346
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GivingTuesday 12/2/2025

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2025 Fall Newsletter

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AL Amyloidosis

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Amyloidosis Awareness Items

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Webinar: Updates in AL Amyloidosis

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Hereditary Amyloidosis

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The Amyloidosis Channel

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Patient Education Activity

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What is Amyloidosis?

AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.

Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.

Featured Patient Story

I am Thankful for this Journey

Laura Unnasch

I am a 47-year-old daughter, wife (proudly of 20 years), mother and friend. At the end of 2017, I was having what I thought was an asthmatic flare up and couldn’t sleep at night without a constant cough. When this continued during the daytime and many attempts of medicines and breathing treatments, I just knew something else was going on....
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2025 Spring Newsletter

May 21, 2025

Be sure to catch up on the latest happenings in our fall newsletter here!

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Calendar & Upcoming Events

Webinar: How Clinical Trials are Changing Amyloidosis Treatment

When


November 5, 2025    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, November 5th, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

How Clinical Trials are Changing Amyloidosis Treatment

Speaker: Dr. Rodney Falk, Cardiologist Brigham Women’s Hospital

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Webinar: Coping with Chronic Disease Life Challenges

When


October 29, 2025    

6:00 pm - 7:45 pm

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Webinar Session: Wednesday, October 29, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Coping with Chronic Disease Life Challenges

Speaker:  Tom Bartlett, Digital Patient Advocate

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Webinar: From Super Bowl Champ to Rare Disease Advocacy

When


October 22, 2025    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, October 22, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

From Super Bowl Champ to Rare Disease Advocacy

Speaker: Art Still, KC Chiefs & Still4Life.org

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Amyloidosis Videos

This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.

Featured Product

“Light The Night For Amyloidosis” Poster

Light the Night for Amyloidosis Poster  18″ x 24″
$15.00

Our Latest Webinar

The Changing Paradigm of Amyloidosis Treatment

Jeffrey Zonder, MD

Karmanos Cancer Institute, Detroit, MI

July 10, 2025

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