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Featured Patient Story

In 2018, I had what I thought was a particularly bad case of bronchitis. As I regularly get sick in the winter, I didn’t think too much about it, except I was unusually weak, and tired. I also started sleeping in a chair, as I couldn’t breathe lying down.

When I finally saw my Internist after 3 months, she noted the fluid in my legs and brought in a cardiologist.  After my EKG, he immediately suspected ATTR-CM and referred me to a specialist at the Cleveland Clinic. Like most people, I had never heard of amyloidosis, so like many, I googled it and the first thing I read was “amyloidosis is a fatal disease with a life expectancy of 2-3 years after diagnosis” YIKES! 

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2024 Winter Newsletter

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WAINUA (eplontersen) granted first-ever regulatory approval in the US for the treatment of adults with polyneuropathy of hereditary transthyretin-mediated amyloidosis

December 21, 2023

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2023 Fall Newsletter
Be sure to catch up on the latest happenings in our fall newsletter.
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