Featured Patient Story

In 2018, I had what I thought was a particularly bad case of bronchitis. As I regularly get sick in the winter, I didn’t think too much about it, except I was unusually weak, and tired. I also started sleeping in a chair, as I couldn’t breathe lying down.

When I finally saw my Internist after 3 months, she noted the fluid in my legs and brought in a cardiologist.  After my EKG, he immediately suspected ATTR-CM and referred me to a specialist at the Cleveland Clinic. Like most people, I had never heard of amyloidosis, so like many, I googled it and the first thing I read was “amyloidosis is a fatal disease with a life expectancy of 2-3 years after diagnosis” YIKES!