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AL Amyloidosis

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Hereditary Amyloidosis

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What is Amyloidosis?

AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.

Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.

Featured Patient Story

My Amyloidosis & Myeloma Journey

Kathleen Reid

I have always been the kind of person who follows the rules. I was always healthy, ate well, exercised, and had a lot of energy. So when I was diagnosed with amyloidosis and myeloma, people asked, “How can this happen to you when you have done everything right?” I admit that I thought the same thing but as I learned...
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2025 Spring Newsletter

May 21, 2025

Be sure to catch up on the latest happenings in our fall newsletter here!

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Calendar & Upcoming Events

Webinar: Office Hours: Dr. Mazen Hanna Cardiologist from the Cleveland Clinic

When


October 8, 2025    

6:00 pm - 7:00 pm

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Webinar Session: Wednesday, October 8, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Office Hours: Dr. Mazen Hanna Cardiologist from the Cleveland Clinic

Speaker: Mazen Hanna, MD, Cardiology, Cleveland Clinic

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Webinar: Open Discussion with Dan Lier

When


September 24, 2025    

6:00 pm - 7:00 pm

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Webinar Session: Wednesday, September 24, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Title:  Open Discussion with Dan Lier

Speaker: Dan Lier, Success Coach

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Webinar: Take the mystery out of your cardiology tests

When


September 17, 2025    

6:00 pm - 7:00 pm

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Webinar Session: Wednesday, September 17, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Title:  Take the mystery out of your cardiology tests

Speaker: Julie L. Rosenthal, MD Cardiologist, Mayo Clinic

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Amyloidosis Videos

This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.

Featured Product

Notecards

Unique, printed to order notecards. The image represents a quilt; each quilt block was beautifully created by someone living with amyloidosis. 12 notecards and envelopes
$15.00

Our Latest Webinar

The Changing Paradigm of Amyloidosis Treatment

Jeffrey Zonder, MD

Karmanos Cancer Institute, Detroit, MI

July 10, 2025

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