Featured Patient Story
Back in 2015, I went to see my Primary Care Manager several times because of fatigue and feeling feverish (when I didn’t have a fever). My muscles and bones were hurting. I was also retaining water, my feet and ankles were huge. I switched PCM’s around September of 2015 and told her what was going on, how I felt tired all the time, etc. read moreLatest News Story Headlines
2024 Fall Newsletter
Be sure to catch up on the latest happenings in our fall newsletter.
Alnylam Presents Detailed Results from the Positive HELIOS-B Phase 3 Study of Vutrisiran▼ in Patients with ATTR Amyloidosis with Cardiomyopathy at the European Society of Cardiology Congress
CAMBRIDGE, Mass.--(BUSINESS WIRE)--Aug.
Alnylam Reports Positive Topline Results from HELIOS-B Phase 3 Study of Vutrisiran, Achieving Statistical Significance on Primary and All Secondary Endpoints in Both Overall and Monotherapy Populations
Jun 24, 2024
Calendar & Upcoming Events
Webinar: Accessing your medical records with MyChart
Webinar Session, Wednesday, October 16, 2024 at 6 PM (ET)
Webinar: Updates in AL amyloidosis: Fast Forward in 2024!
Webinar: Updates in AL amyloidosis: Fast Forward in 2024!
Speaker: Dr. Heather Landau, MD Memorial Sloan Kettering Cancer Center
Webinar: Understanding Neuropathy
Webinar Session, Wednesday, October 23, 2024 at 6 PM (ET)
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Featured Product
Ribbon Awareness Pin$8.00Wear your pin proudly and show everyone you are an amyloidosis ambassador.
Shipping :Tax and shipping included. Shipped within one business day of order.
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Featured Product
Gray Logo T Shirt$15.00** FLASH SALE - WHILE SUPPLIES LAST ** Wear our shirt and increase amyloidosis awareness in our community!
50% cotton, 50% polyester Color: Gray – a small logo on the front side; “You are Strong” wording on the back side.
*** Please note: Medium and Large sizes are SOLD OUT. ***
Available sizes : S, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Zebra T Shirt$25.00Wear our zebra logo shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Logo T Shirt$25.00Wear our shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
Our Latest Webinar
UPDATES IN ATTR CARDIAC AMYLOIDOSIS: What's new and exciting for 2024
Frederick L. Ruberg, MD, Omar K. Siddiqi, MD – Boston Medical Center/Boston University – Boston, MA
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