2026 Summer Newsletter
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AL Amyloidosis
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Hereditary Amyloidosis
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Patient Education Activity
Read More HereWhat is Amyloidosis?
AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Featured Patient Story
My hTTR-PN Journey
Tisha Downing
About a year ago, my health took a sudden and frightening turn.
I had been living with Ehlers-Danlos Syndrome (EDS) and POTS, so I was no stranger to chronic illness. But this felt different. My symptoms quickly escalated beyond anything I had experienced before.
I fainted in my bathroom, resulting in a minor concussion. My shortness of breath became so...
Read the Full StoryLatest Headlines
Protego Announces FDA IND Clearance for Phase 2/3 Study of PROT-001 in AL Amyloidosis
October 20, 2026
Oct 19, 2026, 07:01 ET
– Clearance enables initiation of SHIELD-AL, a pivotal study in newly diagnosed patients with lambda AL amyloidosis
– Investigational oral light chain stabilizer to be evaluated as an add-on to standard-of-care plasma cell-directed therapy
SAN...
Calendar & Upcoming Events
Tipping Points in AL and ATTR
Webinar: Tipping Points in AL and ATTR
(These sessions will not be recorded due to patient involvement and HIPAA laws)
For more information on this and upcoming webinars click HERE
Navigating the Holidays While Living with a Rare or Chronic Illness
Webinar: Navigating the Holidays While Living with a Rare or Chronic Illness
(These sessions will not be recorded due to patient involvement and HIPAA laws)
For more information on this and upcoming webinars click HERE
Understand Your Test Results: What They Mean and What to Ask Next
Webinar: Understand Your Test Results: What They Mean and What to Ask Next
(These sessions will not be recorded due to patient involvement and HIPAA laws)
For more information on this and upcoming webinars click HERE
Amyloidosis Videos
This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.
Featured Product
Logo T-Shirt
FLASH SALE: Pick up our classic T-Shirt for $15.00 while supplies last! Wear our shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester.
$15.00
S, M, L, XL, and XXL