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Lori Grover

Featured Patient Story

I live in Toronto, Ontario and have AL amyloidosis with multiple organ involvement.

I am currently in a clinical trial and I’m happy to say that I’m doing well. I am one of only 260 people worldwide receiving this treatment; which I believe has given me my life back. I want my story to bring some much needed awareness to this horrible disease, and hope to those who are newly diagnosed.

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Latest News Story Headlines

Amyloid Removal Looks Possible in ATTR Cardiomyopathy Imaging Trial

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Ultromics granted FDA Breakthrough Device Designation for AI-enhanced Cardiac Amyloidosis detection

| By Ultromics

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NEURO-TTRansform Phase III results presented at AAN showed eplontersen demonstrated consistent and sustained improvement in all measures of disease and quality of life through 66 weeks

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Calendar & Upcoming Events

Support Group Meeting - New York

The Weill Cornell Medicine Center holds free amyloidosis support group meetings virtually every month.  These groups are led by a medical oncology

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Amyloidosis Videos

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UPDATES IN ATTR CARDIAC AND NEUROLOGICAL AMYLOIDOSIS: What's new and exciting for 2022 and beyond

Frederick L. Ruberg, MD, Omar K. Siddiqi, MD, K. H. Vincent Lau, and Michelle Kaku, MD – Boston Medical Center/Boston University – Boston, MA

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