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Lori Grover

Featured Patient Story

I live in Toronto, Ontario and have AL amyloidosis with multiple organ involvement.

I am currently in a clinical trial and I’m happy to say that I’m doing well. I am one of only 260 people worldwide receiving this treatment; which I believe has given me my life back. I want my story to bring some much needed awareness to this horrible disease, and hope to those who are newly diagnosed.

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Latest News Story Headlines

2024 Winter Newsletter

Explore the most recent updates in the

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WAINUA (eplontersen) granted first-ever regulatory approval in the US for the treatment of adults with polyneuropathy of hereditary transthyretin-mediated amyloidosis

December 21, 2023

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2023 Fall Newsletter
Be sure to catch up on the latest happenings in our fall newsletter.
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Calendar & Upcoming Events

Support Group Meeting - New York

The Weill Cornell Medicine Center holds free amyloidosis support group meetings virtually every month.  These groups are led by a medical oncology

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WEBINAR: What is new and exciting in ATTR cardiac amyloidosis 2024

What's new and exciting in ATTR cardiac amyloidosis 2024 Webinar - April 29th - 3:00 pm ET

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WEBINAR - Treating Amyloidosis – insights from specialist center experts


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Amyloidosis Videos

Our Latest Webinar

Beyond Standard of Care Treatment for Light Chain (AL) Amyloidosis: The Promise of Tomorrow

Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY

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