7151 N. Main St. Ste. 2 Clarkston, MI 48346
248-922-9610

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What is Amyloidosis?

AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.

Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.

Featured Patient Story

My hTTR-PN Journey

Tisha Downing

About a year ago, my health took a sudden and frightening turn. I had been living with Ehlers-Danlos Syndrome (EDS) and POTS, so I was no stranger to chronic illness. But this felt different. My symptoms quickly escalated beyond anything I had experienced before. I fainted in my bathroom, resulting in a minor concussion. My shortness of breath became so...
Read the Full Story

Latest Headlines

Immix Biopharma Announces 95% Complete Response Rate in Interim Update From relapsed/refractory AL Amyloidosis Clinical Trial NEXICART-2

July 23, 2026

– Of first 20 patients, all four MRD-negative patients have converted to complete response (CR) –

– CR rate now 95% (19 of 20 patients) –

– All CRs reached within 1 year of follow-up post-dosing –

...
Read Full Article

Calendar & Upcoming Events

Cardiac Testing in Amyloidosis

When


August 26, 2026    

6:00 pm - 6:45 pm

Webinar Session: Wednesday, August 26th at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Cardiac Testing in Amyloidosis

Learn how cardiac testing can help detect and monitor heart involvement in amyloidosis. We will explain common tests, what to expect, and how results may guide care, with time for patient and caregiver questions.

Hasan Siddiqi MD, MSCR, FACC is an advanced heart failure cardiologist and directs its cardiac amyloidosis program. He manages amyloidosis, heart failure, VAD, and transplant patients in the world’s largest heart transplant center, leads research and trials, and trained at Harvard, Michigan, Penn, and Brigham.

Speaker:  Hasan Siddiqi MD, MSCR, FACC 

How I Evaluate and Treat Peripheral Neuropathy in ATTR & AL Amyloidosis

When


August 19, 2026    

6:00 pm - 6:45 pm

Webinar Session: Wednesday, August 19th at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

How I Evaluate and Treat Peripheral Neuropathy in ATTR & AL Amyloidosis

Learn how peripheral neuropathy is evaluated and treated in patients with amyloidosis, including TTR and AL types. This session reviews diagnostic approaches, symptom management, rehabilitation strategies, treatment options, and disease-modifying therapies that may help patients and care partners understand next steps, care planning, and support.

Amanda C. Peltier, MD, MS, is Professor of Neurology and Medicine and Chief of the Neuromuscular Division at Vanderbilt University Medical Center. Her work focuses on peripheral neuropathies, including amyloidosis-related peripheral and autonomic neuropathy. She is active in ATTR neuropathy guideline work and has contributed to identifying clinical trial endpoints for neuropathy.

Speaker:  Amanda C. Peltier, MD, MS

Misfolded Proteins: How Amyloidosis Impacts Kidney Function

When


August 12, 2026    

6:00 pm - 6:45 pm

Webinar Session: Wednesday, August 12th at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Misfolded Proteins: How Amyloidosis Impacts Kidney Function

Learn how AL amyloidosis damages the kidneys, why early recognition is critical, and how today’s treatments can slow disease progression and preserve kidney function. We’ll also highlight the growth of Vanderbilt’s Amyloidosis Program (VAMP) and its impact on improving care across the region.

Anthony J. Langone, MD MS is a nephrologist and transplant specialist focused on kidney and pancreas transplantation, amyloidosis, and multiple myeloma. He supports patients with renal involvement in amyloidosis and brings research experience in medication side effects, biomarkers, transplant care, and kidney protection strategies.

Speaker: Anthony J. Langone, MD MS

Amyloidosis Videos

This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.

Featured Product

Zebra T Shirt

FLASH SALE:  Pick up our Zebra Shirt for $15.00 while supplies last! Wear our zebra logo shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester
$15.00
S and M

Our Latest Webinar

Cardiac Amyloidosis – What You Need To Know

Hasan K. Siddiqi, MD, MSCR, FACC

Vanderbilt Health, Nashville, TN

May 7, 2026

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