2026 Summer Newsletter
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AL Amyloidosis
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Amyloidosis Awareness Items
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Hereditary Amyloidosis
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The Amyloidosis Channel
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Patient Education Activity
Read More HereWhat is Amyloidosis?
AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Featured Patient Story
My hTTR-PN Journey
Tisha Downing
About a year ago, my health took a sudden and frightening turn.
I had been living with Ehlers-Danlos Syndrome (EDS) and POTS, so I was no stranger to chronic illness. But this felt different. My symptoms quickly escalated beyond anything I had experienced before.
I fainted in my bathroom, resulting in a minor concussion. My shortness of breath became so...
Read the Full StoryLatest Headlines
Protego Announces FDA IND Clearance for Phase 2/3 Study of PROT-001 in AL Amyloidosis
October 20, 2026
Oct 19, 2026, 07:01 ET
– Clearance enables initiation of SHIELD-AL, a pivotal study in newly diagnosed patients with lambda AL amyloidosis
– Investigational oral light chain stabilizer to be evaluated as an add-on to standard-of-care plasma cell-directed therapy
SAN...
Calendar & Upcoming Events
When Fear Takes Over: Calming Anxiety About Your Health and Future
Webinar: When Fear Takes Over: Calming Anxiety About Your Health and Future
(These sessions will not be recorded due to patient involvement and HIPAA laws)
For more information on this and upcoming webinars click HERE
AL Amyloidosis Treatment: Today’s Care and Emerging Therapies
Webinar: AL Amyloidosis Treatment: Today’s Care and Emerging Therapies
(These sessions will not be recorded due to patient involvement and HIPAA laws)
For more information on this and upcoming webinars click HERE
Less Stress, Better Care: Prepare for Tests, Procedures and Results
Webinar: Less Stress, Better Care: Prepare for Tests, Procedures and Results
(These sessions will not be recorded due to patient involvement and HIPAA laws)
For more information on this and upcoming webinars click HERE
Amyloidosis Videos
This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.
Featured Product
Notecards
Unique, printed to order notecards. The image represents a quilt; each quilt block was beautifully created by someone living with amyloidosis. 12 notecards and envelopes
$15.00