What is Amyloidosis?
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
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My AL Saga

Susan MacMillan
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2026 Winter Newsletter

January 15, 2026
Be sure to catch up on the latest happenings in our winter newsletter here!
Calendar & Upcoming Events
4th Annual Bradley Z. Naifeh Amyloidosis Conference
A Multispecialty Perspective on Amyloidosis
Saturday, May 9 | Medical Professionals Conference
Target Audience: Cardiologists, hematologists, neurologists, nephrologists, pulmonologists, hepatologists, nurse practitioners, nurses, social workers, transplant coordinators, and trainees in these subspecialties
Presented by: Bradley Z. Naifeh Amyloidosis Clinical Research and Treatment Program at Houston Methodist J.C. Walter Jr. Transplant Center
Amyloidosis is an underrecognized condition because it has historically been misconceived to be a rare disease and presents in a myriad of clinical situations in a subtle manner. Recent advances in therapeutics have made it imperative that this condition is recognized and categorized appropriately in a timely manner so that individuals can get access to appropriate care. Due to a systemic nature of amyloid, various subspecialities are on the fore front of battling this disease. The goal of the Conference is to create a faculty panel from various disciplines to engage in the mission to promote awareness and educate attendees on Amyloidosis in a comprehensive manner.
Medical Professionals Conference – Register Now
In-person and virtual attendance options available **CME/CE credit is available. Please visit the website for more information.
Conference FLYER – View HERE
4th Annual Bradley Z. Naifeh Amyloidosis Conference
A Multispecialty Perspective on Amyloidosis
Friday, May 8 | Educational Conference for Patients and Caregivers*
Target Audience: Patients, caregivers, and family
Presented by: Bradley Z. Naifeh Amyloidosis Clinical Research and Treatment Program at Houston Methodist J.C. Walter Jr. Transplant Center
Amyloidosis is an underrecognized condition because it has historically been misconceived to be a rare disease and presents in a myriad of clinical situations in a subtle manner. Recent advances in therapeutics have made it imperative that this condition is recognized and categorized appropriately in a timely manner so that individuals can get access to appropriate care. Due to a systemic nature of amyloid, various subspecialities are on the fore front of battling this disease. The goal of the Conference is to create a faculty panel from various disciplines to engage in the mission to promote awareness and educate attendees on Amyloidosis in a comprehensive manner.
Educational Conference for Patients and Caregivers – Register Now
In person and Zoom option
Conference FLYER – View HERE
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm
Webinar Session: Wednesday, April 1st at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm
Speaker: Cath Jayasuriya, Presenter


Amyloidosis Videos
Featured Product
Champion T-Shirt

Wear our shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester Color: Dark Gray
Wear our shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester Color: Dark Gray







