What is Amyloidosis?
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Featured Patient Story
My hTTR-PN Journey

Tisha Downing
Latest Headlines
Immix Biopharma Announces 95% Complete Response Rate in Interim Update From relapsed/refractory AL Amyloidosis Clinical Trial NEXICART-2

July 23, 2026
– Of first 20 patients, all four MRD-negative patients have converted to complete response (CR) –
– CR rate now 95% (19 of 20 patients) –
– All CRs reached within 1 year of follow-up post-dosing –
...Calendar & Upcoming Events
Amyloidosis Support Group Meeting – Nashville
Amyloidosis Support Group Meeting – Nashville, TN
When: August 15, 2026 11:30 am – 2:30 pm CT
Where: Sperry’s Restaurant Cool Springs 650 Frazier Drive Franklin, TN
Speakers:
Margie Gale, Vanderbilt Worklife Connections Counselor
Alison Keenan, Patient
Focus for this meeting is patient well being.
RSVP: Adreinne Molteni @ [email protected] or 615-497-1770
Complimentary lunch will be provided.
Virtual Run
‘Run for Your Life’ Run-Walk-Roll-Bike event!
Registration is now open for the 2026 Run-Walk-Roll-Bike event! Join the Amyloidosis Foundation as we come together to raise awareness and support vital amyloidosis education, advocacy, patient support, and research efforts.
This annual virtual event allows you to participate from anywhere while making a meaningful impact at your own pace.
Event Details:
🗓️ June 1, 2026 – September 8, 2026
🏃 Run, walk, bike, or roll—your choice, your pace
🎁 All registrants receive an event T-shirt
Ready to get involved?
✅ Register today: https://bit.ly/2026VirtualWalk
✅ Invite friends and family to join your team
✅ Make a donation to support amyloidosis research and education
✅ Share your journey on social media using #RunForYourLife2026
Every mile, step, and act of support helps bring hope to patients and families affected by amyloidosis.
PLEASE NOTE: Registrants outside the United States will be required to pay an additional shipping fee for their T-shirt.
The role of upfront autologous SCT for primary AL amyloidosis
Webinar Session: Wednesday, July 29th at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
The role of upfront autologous SCT for primary AL amyloidosis
Join us for an informative session with Dr. Tibor Kovacsovics on the role of upfront autologous stem cell transplantation in treating primary AL amyloidosis. Learn how this treatment may affect outcomes, what patients can expect during the process, and how it fits into overall disease management. Helpful for patients and caregivers.
Dr. Tibor Kovacsovics is Chief of Hematology and Medical Director of Leukemia at City of Hope Cancer Center Phoenix. A hematologist-oncologist with 20 years of clinical research experience, he specialises in AML, ALL, stem cell transplantation, and amyloidosis. He trained at Harvard Medical School/MGH/Brigham and Women’s, co-founded the Utah Amyloidosis Program at Huntsman Cancer Institute, and has served as principal investigator on dozens of landmark hematology studies.
Speaker: Tibor Kovacsovics, MD


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