7151 N. Main St. Ste. 2 Clarkston, MI 48346
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2026 Summer Newsletter

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AL Amyloidosis

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Hereditary Amyloidosis

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Patient Education Activity

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What is Amyloidosis?

AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.

Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.

Featured Patient Story

My hTTR-PN Journey

Tisha Downing

About a year ago, my health took a sudden and frightening turn. I had been living with Ehlers-Danlos Syndrome (EDS) and POTS, so I was no stranger to chronic illness. But this felt different. My symptoms quickly escalated beyond anything I had experienced before. I fainted in my bathroom, resulting in a minor concussion. My shortness of breath became so...
Read the Full Story

Latest Headlines

2026 Summer Newsletter

July 30, 2026

☀️ Our latest Summer Newsletter is here!

Catch up on the latest Amyloidosis Foundation news, upcoming events, and ways you can get involved. We hope you’ll take a few minutes to check it out and stay connected with...

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Calendar & Upcoming Events

A Cardiologist’s Approach: How I Treat Cardiac Amyloidosis

When


September 30, 2026    

6:00 pm - 6:45 pm

Webinar Session: Wednesday, September 30th at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

A Cardiologist’s Approach: How I Treat Cardiac Amyloidosis

Living with cardiac amyloidosis can be overwhelming, but understanding your care can make all the difference. Learn how Dr. Grogan evaluates patients, selects treatment options, manages symptoms, and monitors heart health over time. Gain practical insights to help you better understand your care and what to expect.

Speaker: Martha Grogan, MD  Mayo Clinic

Amyloidosis Neuropathy: Your Nerve Questions Answered

When


September 23, 2026    

6:00 pm - 6:45 pm

Webinar Session: Wednesday, September 23rd at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Amyloidosis Neuropathy: Your Nerve Questions Answered

Neuropathy can affect daily life in many ways. Join Dr. Pinto as he explains how amyloidosis affects the nerves, how neuropathy is diagnosed, available treatment options, and practical strategies for managing symptoms to help improve quality of life.

Speaker: Marcus Vinicius R. Pinto, MD, MS  Mayo Clinic

Ask the Hematologist: Your AL Amyloidosis Questions Answered

When


September 16, 2026    

6:00 pm - 6:45 pm

Webinar Session: Wednesday, September 16th at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Ask the Hematologist: Your AL Amyloidosis Questions Answered

Have questions about AL amyloidosis? Join Dr. Gertz as he answers patient questions about diagnosis, treatment options, side effects, monitoring, recovery, and more. Gain trusted, expert guidance to better understand your condition, navigate your care with confidence, and make informed decisions throughout your treatment journey.

Speaker: Morie A. Gertz, MD, MACP  Mayo Clinic

Amyloidosis Videos

This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.

Featured Product

Champion T-Shirt

Wear our shirt and increase amyloidosis awareness in your community!  50% cotton, 50% polyester Color: Dark Gray

$25.00
S, XL, and XXL

Our Latest Webinar

Cardiac Amyloidosis – What You Need To Know

Hasan K. Siddiqi, MD, MSCR, FACC

Vanderbilt Health, Nashville, TN

May 7, 2026

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