7151 N. Main St. Ste. 2 Clarkston, MI 48346
248-922-9610

2026 Winter Newsletter

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LTN Info and Toolkit

AL Amyloidosis

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Amyloidosis Awareness Items

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Hereditary Amyloidosis

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The Amyloidosis Channel

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Patient Education Activity

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What is Amyloidosis?

AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.

Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.

Featured Patient Story

My AL Journey

Susan Watkins

My Amyloidosis journey began in the spring of 2015. The symptoms were there for months, but it was easy to look past them. I knew I didn’t feel right, but I didn’t feel terrible either. There were plenty of possible explanations. I was over 50 and had just been through menopause. Maybe my plantar fasciitis was acting up again, causing...
Read the Full Story

Latest Headlines

2026 Winter Newsletter

January 15, 2026

Be sure to catch up on the latest happenings in our winter newsletter here!

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Calendar & Upcoming Events

2026 Bradley Z. Naifeh Amyloidosis Conference (Patients & Caregivers)

When


May 8, 2026    

8:00 am - 5:00 pm

Where

Houston Methodist J.C. Walter Jr. Transplant Center
6670 Bertner Ave., Houston, TX, 77030

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A Multispecialty Perspective on Amyloidosis 

Friday, May 8 | Educational Conference for Patients and Caregivers*

Target Audience: Patients, caregivers, and family

Presented by: Bradley Z. Naifeh Amyloidosis Clinical Research and Treatment Program at Houston Methodist J.C. Walter Jr. Transplant Center

Amyloidosis is an underrecognized condition because it has historically been misconceived to be a rare disease and presents in a myriad of clinical situations in a subtle manner. Recent advances in therapeutics have made it imperative that this condition is recognized and categorized appropriately in a timely manner so that individuals can get access to appropriate care. Due to a systemic nature of amyloid, various subspecialities are on the fore front of battling this disease. The goal of the Conference is to create a faculty panel from various disciplines to engage in the mission to promote awareness and educate attendees on Amyloidosis in a comprehensive manner.

Educational Conference for Patients and Caregivers  – Register Now

In person and Zoom option

Conference FLYER – View HERE

Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm

When


April 1, 2026    

6:00 pm - 6:45 pm

 

Webinar Session: Wednesday, April 1st at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Speaker: Cath Jayasuriya, Presenter

5 (more) Things every amyloidosis patient needs to know

When


March 25, 2026    

6:00 pm - 6:45 pm

Webinar Session: Wednesday, March 25th at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

5 (more) Things every amyloidosis patient needs to know

Speaker: Dr. Stacey Goodman, Hematologist

Amyloidosis Videos

This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.

Featured Product

Zebra T Shirt

FLASH SALE:  Pick up our Zebra Shirt for $15.00 while supplies last! Wear our zebra logo shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester
$15.00
S and M

Our Latest Webinar

The Changing Paradigm of Amyloidosis Treatment

Jeffrey Zonder, MD

Karmanos Cancer Institute, Detroit, MI

July 10, 2025

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