What is Amyloidosis?
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
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My AL Journey

Susan Watkins
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2026 Winter Newsletter

January 15, 2026
Be sure to catch up on the latest happenings in our winter newsletter here!
Calendar & Upcoming Events
2026 Bradley Z. Naifeh Amyloidosis Conference (Patients & Caregivers)
A Multispecialty Perspective on Amyloidosis
Friday, May 8 | Educational Conference for Patients and Caregivers*
Target Audience: Patients, caregivers, and family
Presented by: Bradley Z. Naifeh Amyloidosis Clinical Research and Treatment Program at Houston Methodist J.C. Walter Jr. Transplant Center
Amyloidosis is an underrecognized condition because it has historically been misconceived to be a rare disease and presents in a myriad of clinical situations in a subtle manner. Recent advances in therapeutics have made it imperative that this condition is recognized and categorized appropriately in a timely manner so that individuals can get access to appropriate care. Due to a systemic nature of amyloid, various subspecialities are on the fore front of battling this disease. The goal of the Conference is to create a faculty panel from various disciplines to engage in the mission to promote awareness and educate attendees on Amyloidosis in a comprehensive manner.
Educational Conference for Patients and Caregivers – Register Now
In person and Zoom option
Conference FLYER – View HERE
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm
Webinar Session: Wednesday, April 1st at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm
Speaker: Cath Jayasuriya, Presenter


5 (more) Things every amyloidosis patient needs to know

Webinar Session: Wednesday, March 25th at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
5 (more) Things every amyloidosis patient needs to know
Speaker: Dr. Stacey Goodman, Hematologist


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