7151 N. Main St. Ste. 2 Clarkston, MI 48346
248-922-9610

2026 Winter Newsletter

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LTN Info and Toolkit

AL Amyloidosis

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Amyloidosis Awareness Items

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Hereditary Amyloidosis

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The Amyloidosis Channel

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Patient Education Activity

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What is Amyloidosis?

AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.

Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.

Featured Patient Story

My AL Saga

Susan MacMillan

In 2003 at age 51, my ECG showed enough of a change to indicate having a stress/echo exercise test. During the course of the test, my ECG became very abnormal, with deeply inverted T-waves. The cardiologist diagnosed restrictive cardiomyopathy. He was very perplexed about why a 51 year old female would develop this. What he did not consider was amyloidosis....
Read the Full Story

Latest Headlines

2026 Winter Newsletter

January 15, 2026

Be sure to catch up on the latest happenings in our winter newsletter here!

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Calendar & Upcoming Events

4th Annual Bradley Z. Naifeh Amyloidosis Conference

When


May 9, 2026    

8:00 am - 5:00 pm

Where

Houston Methodist J.C. Walter Jr. Transplant Center
6670 Bertner Avenue, Houston, TX

Map Unavailable

A Multispecialty Perspective on Amyloidosis 

Saturday, May 9 | Medical Professionals Conference

Target Audience: Cardiologists, hematologists, neurologists, nephrologists, pulmonologists, hepatologists, nurse practitioners, nurses, social workers, transplant coordinators, and trainees in these subspecialties

Presented by: Bradley Z. Naifeh Amyloidosis Clinical Research and Treatment Program at Houston Methodist J.C. Walter Jr. Transplant Center

Amyloidosis is an underrecognized condition because it has historically been misconceived to be a rare disease and presents in a myriad of clinical situations in a subtle manner. Recent advances in therapeutics have made it imperative that this condition is recognized and categorized appropriately in a timely manner so that individuals can get access to appropriate care. Due to a systemic nature of amyloid, various subspecialities are on the fore front of battling this disease. The goal of the Conference is to create a faculty panel from various disciplines to engage in the mission to promote awareness and educate attendees on Amyloidosis in a comprehensive manner.

 Medical Professionals Conference  –  Register Now

In-person and virtual attendance options available     **CME/CE credit is available. Please visit the website for more information.

Conference FLYER – View HERE

4th Annual Bradley Z. Naifeh Amyloidosis Conference

When


May 8, 2026    

8:00 am - 5:00 pm

Where

Houston Methodist J.C. Walter Jr. Transplant Center
6670 Bertner Ave., Houston, TX, 77030

Map Unavailable

A Multispecialty Perspective on Amyloidosis 

Friday, May 8 | Educational Conference for Patients and Caregivers*

Target Audience: Patients, caregivers, and family

Presented by: Bradley Z. Naifeh Amyloidosis Clinical Research and Treatment Program at Houston Methodist J.C. Walter Jr. Transplant Center

Amyloidosis is an underrecognized condition because it has historically been misconceived to be a rare disease and presents in a myriad of clinical situations in a subtle manner. Recent advances in therapeutics have made it imperative that this condition is recognized and categorized appropriately in a timely manner so that individuals can get access to appropriate care. Due to a systemic nature of amyloid, various subspecialities are on the fore front of battling this disease. The goal of the Conference is to create a faculty panel from various disciplines to engage in the mission to promote awareness and educate attendees on Amyloidosis in a comprehensive manner.

Educational Conference for Patients and Caregivers  – Register Now

In person and Zoom option

Conference FLYER – View HERE

Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm

When


April 1, 2026    

6:00 pm - 6:45 pm

 

Webinar Session: Wednesday, April 1st at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Speaker: Cath Jayasuriya, Presenter

Amyloidosis Videos

This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.

Featured Product

Champion T-Shirt

Wear our shirt and increase amyloidosis awareness in your community!  50% cotton, 50% polyester Color: Dark Gray

$25.00
S, M, L, XL, and XXL

Our Latest Webinar

The Changing Paradigm of Amyloidosis Treatment

Jeffrey Zonder, MD

Karmanos Cancer Institute, Detroit, MI

July 10, 2025

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