Skip to main content

RARE Toolkits

Resource Type
Resource Description

The Amyloidosis Foundation is a member of the Global Genes Foundation Alliance. They have generously agreed to allow us to share a link to their RARE Toolkits.

These provide individuals with usable information on a variety of topics related to living with and/or advocating for rare disease patients. RARE Toolkits are created in collaboration with key rare disease stakeholders that have developed a vast array of subject matter expertise and believe in the importance of sharing these best practices.

Please use these resources to help you and your family:

RARE Toolkits